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Nobel Prize Winner and PV Patient Passes Away

It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.

Years ago, after learning that Harold Pinter had pemphigus vulgaris, and prompted by some on the IPPF’s discussion group, I wrote to him.

It was a very carefully worded letter, knowing he must have been accustomed to getting many requests for help in different ways. I explained that we’d never want money from him, but just the honour of having him as the Patron of PEM Friends (UK). He replied immediately┬áby email, agreeing to become our Patron. His email was short and to the point, and that has been the extent of our communications. What a great man to have agreed so readily.

His passing is such a loss to us all.
Find out more about him at

Posted in Issue 58 - Fall 2009


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.