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Passing IVIG Law

If you live in the United States, you have a voice in Congress! The IPPF is asking you to help get your representatives to pass S. 701/H.R. 2002, the Medicare Patient IVIG Access Act.

House of RepresentativesAn important piece of legislation is up for vote and it impacts P/P patients in the United States. Read over HR 2002, the Medicare Patient IVIG Access Act and the sample letter below for more information. When you’re ready, contact your representatives asking them to support this Act.

Please note that emails are the best way to communicate with your member of Congress, given that all postal mail must be screened and irradiated before getting to the member’s office.

For the subject line: HR 2002, the Medicare Patient IVIG Access Act 

Dear Representative _________________________: (Need your representative’s contact information/email? CLICK HERE)

As a constituent affected by the access crisis to intravenous immune globulin (IVIG), I am writing to ask you to support and to co-sponsor HR 2002, the Medicare Patient IVIG Access Act, introduced in April by Representatives Israel, Brady, and Schwartz.  IVIG is used for a number of serious diseases, yet Medicare patients have experienced problems getting IVIG since January 2005 when the Medicare Modernization Act (MMA) changed payment for IVIG and other drugs.  While unintended, the consequences have been grave for Medicare patients, with many people (like me/my loved one if true) unable to find providers to give us/them this lifesaving therapy. 

Two years ago U.S. Department of Health and Human Services (HHS) Office of the Inspector General issued a report on the problem Medicare patients have had in finding providers who would give them IVIG infusions: the Medicare reimbursement was too low to cover the cost many providers pay for IVIG.  The OIG reported that the majority of the hospitals (77.2%) and physicians (96.5%) could not get IVIG at the Medicare reimbursement rate during the second quarter of 2006.  The problem has not improved; in fact it has gotten worse since it has impacted coverage by private payers.

HR 2002 corrects the problems caused by the MMA.  The Medicare Patient IVIG Access Act requires the Secretary of HHS to collect data on IVIG infusion or to review any existing data from providers.  In addition, the bill gives the Secretary of HHS the authority to review the data on the cost of providing IVIG and the authority to institute an additional payment to providers.  Driven by data, the bill will make IVIG reimbursement clearer and more transparent.  Further, the bill requires the Medicare Payment Advisory Commission (MedPAC) to analyze Medicare beneficiaries’ access to IVIG and to make recommendations to Congress and the Secretary about any further changes to reimbursement to ensure that all patients have access to all brands of IVIG in all sites of care.

I cannot tell you how much this bill means to me/my loved one.  Explain your story here.

Please co-sponsor the Medicare Patient IVIG Access Act—it is critical for people like me/my loved one who use IVIG to live life to the fullest.

Thank you very much for your consideration.


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The IPPF THANKS YOU for your support!

Posted in Around the Globe


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