The IPPF is pleased to announce its Patient Education Series Webinars featuring leading pemphigus and pemphigoid physicians and scientists. Please join us in a friendly and casual environment to learn and discover you are not alone. Events last an hour and are structured to give the presenter time to talk before taking questions. The moderator will take your questions in advance or on the webinar regarding the topic of the webinar. If you have a string of questions, we ask that you restrict it to one main question and one follow up. If there is time remaining you may ask additional questions later in the call.
Upcoming Calls:
April 9, 2020
Topic: COVID-19 and Pemphigus and Pemphigoid
Speakers: IPPF Medical Advisory Council Members-
Aimee Payne, MD, PhD
Mary Tomayko, MD, PhD
Emanual Maverakis, MD
4:00pm- 5:00pm (PST)
5:00pm- 6:00pm (MST)
6:00pm- 7:00pm (CST)
7:00pm- 8:00pm (EST)
April 15, 2020
Topic: Pemphigus and Pemphigoid Symptoms
Speaker: Dr. Ron Feldman, Director of the Autoimmune Blistering Disease Clinic and Assistant Professor at Emory University
8:00am- 9:00am (PST)
9:00am- 10:00am (MST)
10:00am- 11:00am (CST)
11:00am- 12:00pm (EST)
This program is sponsored in part by Genentech and Principia Biopharma.
This is a free call. Questions can be submitted prior to the call to becky@pemphigus.org. Questions will be answered in the order they are received. Take advantage of this exciting opportunity! When you connect to the conference you will be placed on MUTE. You will either hear HOLD music or one of the IPPF team talking and providing additional instructions.
Remember: this is not a toll-free call, but you can participate using your computer’s microphone and speakers, tablet (iPad), smart phone, or standard telephone.
FORMAT
This is a Town Hall format. The invited speaker may or may not present information before opening up the “floor” for questions. Attendees will “raise their hand” to ask questions.
PLATFORM
The IPPF uses GoToWebinar or FreeConferenceCallHD for our Patient Education Calls. If you need assistance, email becky@pemphigus.org.
Recordings of Past Patient Education Calls
February 3rd Patient Education Call- Clinical Trials General Q&A (Dr. Annette Czernik) (Transcription)
February 18th Patient Education Call- Pemphigus and Pemphigoid Treatments and Side Effects (Dr. David Fivenson) (Transcription)
March 3rd Patient Education Call- Pemphigus and Pemphigoid Treatments and Side Effects (Dr. Janet Fairley) (Transcription)
April 2 Patient Education Call- Mental Health and Wellness (Lynne Mitchell, RSW).
February Patient Education Call- IVIG in Pemphigus and Pemphigoid (Dr. Razzaque Ahmed) (Transcription)
March Patient Education Call – Oral Health in Pemphigus and Pemphigoid (Jennifer Harmon) (Transcription)
April Patient Education Call – Immunosuppressives in Pemphigus and Pemphigoid (Dr. Neil Korman) (Transcription)
May Patient Education Call – Rituximab and Genentech Access Solutions (Dr. Margaret Michalska) (Presentation Slides) (Transcription)
June Patient Education Call – Treatment of Oral Pemphigus and Pemphigoid (Dr. Joel Laudenbach) (Transcription)
July Patient Education Call – Peer to Peer Support (IPPF Peer Health Coaches) (Transcription)
August 1 Patient Education Call – Pemphigus and Pemphigoid Treatment Q&A (Dr. Kyle Amber) (Transcription)
August 28 Patient Education Call – General P/P Q&A (Dr. Donna Culton) (Transcription)
February Patient Education Call – Mental Health with Pemphigus and Pemphigoid (Janet Segall and Ivana Mitchell) (Transcription)
March Patient Education Call – Research and Advocacy- Transcription (Dr. Donna Culton and Marc Yale)
April Patient Education Call – IPPF Awareness Program Update (Kate Frantz and Bryon Scott) Presentation Slides
June Patient Education Call – Rituximab as a Treatment Option for Pemphigus and Pemphigoid Patients (Dr. Victoria Werth) Presentation Slides (Transcription)
July Patient Education Call – Treatment Q&A (Dr. M. Peter Marinkovich) (Transcription)
August Patient Education Call – Prednisone and its Side Effects (Dr. Ron Feldman) (Transcription)
November Patient Education Call – IPPF Peer Health Coaches Q &A Session (Transcription)
February Patient Education Call – Clinical Studies and Patient Participation (Dr. Victoria Werth)
March Patient Education Call – Patient to Patient: Peer Health Coaches
April Patient Education Call – Chronic Illness and Mental Health
May Patient Education Call – Dental Implants and Oral Surgery in Patients with Pemphigus and Pemphigoid
June Patient Education Call – Women’s Health Issues with Pemphigus and Pemphigoid (Dr. Vanessa Holland)
July Patient Education Call – Natural History Study, the IPPF, and You! (Presentation Slides)
October Patient Education Call – Insurance Issues with Pemphigus and Pemphigoid- Viki Figge, Kroger Specialty Infusion (Presentation Slides)
November Patient Education Call – The Immune System (Dr. Razzaque Ahmed) (Transcription)
March Patient Education Call – Treatments & Preventing Side Effects (Dr. Victoria Werth)
April Patient Education Call – Steroid-Sparing Treatments (Dr. David Fivenson)
May Patient Education Call – Oral Pemphigus & Pemphigoid (Dr. Paul Edwards)
June Patient Education Call – Pemphigus & Pemphigoid Q&A (Dr. Peter Marinkovich)
July Patient Education Call – Intravenous Immunoglobulin {IVIG} (Dr. Razzaque Ahmed)
August Patient Education Call – Patient to Patient Q&A (Janet Segall and Marc Yale)
October Patient Education Call – Now You’re Starting IVIG – What Now? (Vicki Starr, MedPro RX – A Diplomat Company)
March Patient Education Call – Causes & Genetics of Pemphigus & Pemphigoid (Dr. Animesh Sinha) (Transcription)
April Patient Education Call – Caregivers ( Sheila Warnock of Share the Care)
May Patient Education Call – Patient to Patient Support (Marc Yale, Esther Nelson, Rudy Soto, Rebecca Van Hout, and Hannah Heinzig) (Transcription)
June Patient Education Call – Pemphigus & Pemphigoid in Women (Dr. Vanessa Holland) (Transcription)
July Patient Education Call – One Patient’s Journey (Molly LaFata)
August Patient Education Call – Patient to Patient Support (Janet Segall and Marc Yale) (Transcription)
November Patient Education Call – The Effects of Steroids (Dr. Yousaf Ali) – AUDIO ONLY
December Patient Education Call – Rituximab in Pemphigus and Pemphigoid: Successes, Failures, and Next-Generation Therapies (Dr. Aimee Payne)
May Patient Education Call – Patient to Patient Support (Mei Ling Moore, Rebecca Oling, Janet Segall, Rebecca Strong, and Marc Yale) (Transcription)
June Patient Education Call – Rituximab [Rituxan/MabThera] (Dr. Grant Anhalt) (Transcription)
July Patient Education Call – P/P General Q & A (Dr. Neil Korman) (Transcription)
August Patient Education Call – Oral P/P (Dr. Terry Rees)
September Patient Education Call – IVIG (Dr. Sergei Grando) (Transcription)
October Patient Education Call – Patient to Patient Support (Janet Segall and Marc Yale) (Transcription)
November Patient Education Call – Dealing with Mental Health While Combating a Rare Disease (Susan Cohen Byrne, M.A.) (Transcription)
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