The IPPF is pleased to announce its Patient Education Calls featuring leading pemphigus and pemphigoid physicians and scientists. Please join us from time to time in a friendly and casual telephone environment. Events last an hour and are structured to give the presenter time to talk before taking questions. Everyone is placed on mute from the time they enter the conference until called upon by the speaker or a moderator. If a caller has a string of questions, we ask that they restrict it to one main question and one follow up. If there is time remaining they may ask additional questions later in the call.
Our format allows for one main conference area where the guest speaker and a moderator are located. For a list of upcoming IPPF Patient Education Conference Calls, please email becky@pemphigus.org. Take advantage of this exciting opportunity! When you connect to the conference you will be placed on MUTE. You will either hear HOLD music or one of the IPPF team talking and providing additional instructions.
Remember: this is not a toll-free call, but you can participate using your computer’s microphone and speakers, tablet (iPad), smart phone, or standard telephone.
FORMAT
This is a Town Hall format. The invited speaker may or may not present information before opening up the “floor” for questions. Attendees will “raise their hand” to ask questions.
PLATFORM
The IPPF uses GoToWebinar or FreeConferenceCallHD for our Patient Education Calls. If you need assistance, email becky@pemphigus.org.
Recordings of Past Patient Educations Calls
February Patient Education Call – Clinical Studies and Patient Participation (Dr. Victoria Werth)
March Patient Education Call – Patient to Patient: Peer Health Coaches
April Patient Education Call – Chronic Illness and Mental Health
May Patient Education Call – Dental Implants and Oral Surgery in Patients with Pemphigus and Pemphigoid
June Patient Education Call – Women’s Health Issues with Pemphigus and Pemphigoid (Dr. Vanessa Holland)
July Patient Education Call – Natural History Study, the IPPF, and You! (Presentation Slides)
March Patient Education Call – Treatments & Preventing Side Effects (Dr. Victoria Werth)
April Patient Education Call – Steroid-Sparing Treatments (Dr. David Fivenson)
May Patient Education Call – Oral Pemphigus & Pemphigoid (Dr. Paul Edwards)
June Patient Education Call – Pemphigus & Pemphigoid Q&A (Dr. Peter Marinkovich)
July Patient Education Call – Intravenous Immunoglobulin {IVIG} (Dr. Razzaque Ahmed)
August Patient Education Call – Patient to Patient Q&A (Janet Segall and Marc Yale)
March Patient Education Call – Causes & Genetics of Pemphigus & Pemphigoid (Dr. Animesh Sinha)
April Patient Education Call – Caregivers ( Sheila Warnock of Share the Care)
June Patient Education Call – Pemphigus & Pemphigoid in Women (Dr. Vanessa Holland)
July Patient Education Call – One Patient’s Journey (Molly LaFata)
August Patient Education Call – Patient to Patient Support (Janet Segall and Marc Yale)
November Patient Education Call – The Effects of Steroids (Dr. Yousaf Ali) – AUDIO ONLY
June Patient Education Call – Rituximab [Rituxan/MabThera] (Dr. Grant Anhalt)
July Patient Education Call – P/P General Q & A (Dr. Neil Korman)
August Patient Education Call – Oral P/P (Dr. Terry Rees)
September Patient Education Call – IVIG (Dr. Sergei Grando)
October Patient Education Call – Patient to Patient Support (Janet Segall and Marc Yale)
Support the Patient Education Calls!
One attendee said the call was "the best thing I have ever attended!" And rightfully so! Studies show peer-to-peer discussions with question and answer sessions that offer lived experiences and coping skills have positive effects on patient performance, adaptability and well-being. Additional studies show peer telephone supporters improve their confidence, self-awareness, and self-esteem while reducing feelings of depression, isolation and loneliness. We offer these informative calls free of charge, but we still have costs associated with planning and hosting them. If you enjoyed the call, consider donating to help expand the program.
I Support the PEC!