An IPPF News Site

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Foundation


  • IPPF 2016 Year in Review

    The IPPF had another great year in 2016. Here are a few highlights:

  • International Pemphigus & Pemphigoid Foundation Announces Research Grant Program

    The International Pemphigus and Pemphigoid Foundation (IPPF) is pleased to announce the availability of a seed grant program to encourage and support patient-oriented research of pemphigus and pemphigoid. The intent of these grants is to support well-defined research projects that have a specified benefit for improving the treatment, health, disease management, or diagnosis of persons ...

  • Where Does My IPPF Donation Go?

    The IPPF appreciates the generosity of each and every dollar we receive, and we allocate donated funds in a responsible manner. After all, your generosity allows us to carry out our mission of improving the quality of life for all people affected by pemphigus and pemphigoid through early diagnosis and support.

More Foundation . . .

Support & Education


  • Can’t Grind Me Down

    My name is Rudy Soto. I am from the great state of Texas and have lived there all of my life. I am married to a wonderful woman, Jennifer, who is my greatest supporter. We have four awesome children—two girls and two boys who range in age from 5 to 23. My motto is Can’t ...

  • Mid-Atlantic Support Group Success

    On Saturday, February 4th, the Mid-Atlantic Support Group held its first meeting in Stafford, VA, with 10 new members attending. This meeting was supported by Vicky Starr and Diplomat Pharmacy. Carolyn Fota approached the IPPF last fall about starting a support group in her area. Her reason for wanting to start a support group was simple. ...

  • Battle Against Myself

    Last year was shaping up to be a very important year. I had just gotten an associate degree in journalism and was all set to transfer to a four-year university in the fall to pursue my B.A. On top of that, I turned 21 in February and was looking forward to savoring all the exciting ...

More Support & Education . . .

Awareness


  • Awareness Campaign Becomes a Program

    It started with a vision to make more people aware of pemphigus and pemphigoid (P/P). Those following the IPPF Awareness Campaign may know it was designed as a three-year initiative with January 2017 as a tentative end date. Well, January has come and gone, and the Awareness Campaign—or should I say, Program—is here to stay. ...

  • IPPF Patient Educators by the Numbers: 2014-2016

    The end of the year is a great time to look back at our programs and assess the progress we’ve made toward reducing diagnostic delays of pemphigus and pemphigoid. Our patient educators continued to reach more and more dental students at schools across the country.

  • Greetings from the New IPPF Outreach Manager: Becky Strong

    Working for the IPPF has been something I have been interested in doing for about five years, since my pemphigus vulgaris finally got under control. I knew from my first contact with the Foundation that this is an amazing group of people. I am proud of the way our community pulls together and rallies for ...

More Awareness . . .

Advocacy


  • Rare Disease Day 2017

    Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I felt very alone and isolated when I found out I had pemphigus vulgaris. Then I found community in the IPPF. It was very comforting to know there were others out there who had gone ...

  • Rare Disease Patients Need 21st Century Cures Now

    Although there has been a huge public outcry over the cost of prescription drugs, there has been little public discussion about the need for innovation for patients who don’t yet have an effective therapy. It is estimated that 1 in 10 Americans suffer from a rare disease, and only 5% of rare diseases have a ...

  • Rally for Medical Research

    In addition to our general request for NIH funding, I stressed the importance of cutting edge research on rare diseases and emphasized the significance of the Open Act, which incentivizes pharmaceutical companies to make treatments available off-label.

More Advocacy . . .