An IPPF News Site

pempress-logo-final-pp-only200

Sections

Foundation


More Foundation . . .

Support & Education


More Support & Education . . .

Awareness


More Awareness . . .

Advocacy


  • Advocating for Dental Research

    The IPPF had the pleasure of interviewing Lindsey Horan, AADR’s Assistant Director of Government Affairs about their 2018 Advocacy Day and important legislative issues.

  • In-District Lobby Days

    For the past four years, I have joined IPPF patients and others in the rare disease community across the country in advocating to congressional members in my district. The IPPF is joining forces again this year with Rare Disease Legislative Advocates (RDLA) for In-District Lobby Days from August 7, 2017 through September 6, 2017.

  • Rare Disease Day 2017

    Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I felt very alone and isolated when I found out I had pemphigus vulgaris. Then I found community in the IPPF. It was very comforting to know there were others out there who had gone ...

More Advocacy . . .