An IPPF News Site

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Sections

Foundation


More Foundation . . .

Support & Education


  • Rudy Takes Control (Patient Journey Series #2)

    Patient Journey Series, Story 2: Rudy Connects with the IPPF. “My Peer Health Coach became a special person that I was able to count on. She offered words of encouragement and let me know I was not alone—she would be with me on my journey to reach remission.”

  • Halima’s Diagnosis (Patient Journey Series #1)

    Welcome to the Patient Journey Series: Story 1, Halima’s Diagnosis. “My symptoms started at the beginning of April 2018. My mouth was inflamed, and I had painful blisters on both sides that made it very difficult to eat or drink. I had no idea what was causing my symptoms, and I went to four different ...

  • A Look Back at UNC Dental Day 2018

    On October 12, 2018, I participated in the IPPF Dental Day as part of the 2018 Patient Education Conference. Dental Day was hosted at the UNC Adams School of Dentistry by Drs. Donna Culton and Ricardo Padilla. As a dental student, I found this to be by far the most exciting and enriching experience of ...

More Support & Education . . .

Awareness


More Awareness . . .

Advocacy


  • Advocating for Dental Research

    The IPPF had the pleasure of interviewing Lindsey Horan, AADR’s Assistant Director of Government Affairs about their 2018 Advocacy Day and important legislative issues.

  • In-District Lobby Days

    For the past four years, I have joined IPPF patients and others in the rare disease community across the country in advocating to congressional members in my district. The IPPF is joining forces again this year with Rare Disease Legislative Advocates (RDLA) for In-District Lobby Days from August 7, 2017 through September 6, 2017.

  • Rare Disease Day 2017

    Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I felt very alone and isolated when I found out I had pemphigus vulgaris. Then I found community in the IPPF. It was very comforting to know there were others out there who had gone ...

More Advocacy . . .