PemPress Awareness

An IPPF News Site

  • Dental Student Awareness: Boston University

    It wasn’t easy getting to this meeting. After a four-hour train ride, I decided to walk to my hotel, nearly two miles away. It was rush hour, days after a major snowstorm. Boston was cold, and the streets were crowded with traffic barely visible beyond mounds of blackened snow. The walk was neither refreshing nor ...

  • Awareness Campaign Becomes a Program

    It started with a vision to make more people aware of pemphigus and pemphigoid (P/P). Those following the IPPF Awareness Campaign may know it was designed as a three-year initiative with January 2017 as a tentative end date. Well, January has come and gone, and the Awareness Campaign—or should I say, Program—is here to stay. ...

  • IPPF Patient Educators by the Numbers: 2014-2016

    The end of the year is a great time to look back at our programs and assess the progress we’ve made toward reducing diagnostic delays of pemphigus and pemphigoid. Our patient educators continued to reach more and more dental students at schools across the country.

  • Greetings from the New IPPF Outreach Manager: Becky Strong

    Working for the IPPF has been something I have been interested in doing for about five years, since my pemphigus vulgaris finally got under control. I knew from my first contact with the Foundation that this is an amazing group of people. I am proud of the way our community pulls together and rallies for ...

  • The Long Road: A Pemphigoid Patient’s Journey to Diagnosis

    Sharon Williamson’s journey to a pemphigoid diagnosis started in July of 2014 when her mouth began to bleed whenever she brushed her teeth. Like many undiagnosed P/P patients, Sharon first shared her symptoms with her dentist. This dentist did not recognize Sharon’s symptoms and told her to floss more frequently.

  • IPPF Awareness Campaign Receives Continued Funding from Sy Syms Foundation

    The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the IPPF’s Early Diagnosis Awareness Campaign. This will be the fourth consecutive year the Sy Syms Foundation has supported the Campaign.

  • The Challenges of Dental Implants in P/P Patients

    The biggest problem with dental implants in pemphigus and pemphigoid (P/P) patients is that P/P are often treated with corticosteroids or other immune suppressants for prolonged periods of time.

  • The Rarest Day of Them All

    Monday, February 29, 2016, was “Leap Day,” the rarest day of the year. But for the rare disease community, it was much, much more: it was International Rare Disease Day.

  • Raising Awareness at Dental Conferences

    Conferences are an excellent way for us to meet dental professionals and spread awareness of P/P and the IPPF. In November, we attended the American Dental Association’s Annual Meeting in Washington, DC. December found us at the Greater New York Dental Meeting in New York City, and in January we kicked off the new year ...

  • Raising Pemphigus and Pemphigoid Awareness

    On the last day of February millions of people around the world will observe Rare Disease Day. Get involved by visiting the U.S. (www.rarediseaseday.us) or global (www.rarediseaseday.org) Rare Disease Day website before February 29 to learn about events in your area and what you can do.