An IPPF News Site

  • Resilience

    You don’t have to be a Navy SEAL, firefighter, or an NFL football player to be resilient. Resilience is a common trait that you can build upon by developing certain skills. Research has shown that while some people are naturally more resilient, these behaviors can also be learned. Here are some techniques to foster your ...

  • Surgery and Pemphigus Foliaceus: Joe’s Story

    Having a rare autoimmune disease is scary. Once you receive a diagnosis by a dermatologist experienced in treating pemphigus, it’s advisable to have all of your doctors communicate with your dermatologist (Internist, OB-GYN, Dentist, Orthopedist and other specialists).

  • The Importance of a WHOLEistic Point of View in Your Health

    In a disease such as Pemphigoid, where the cause and pathogenesis is unclear and treatments are often trial-and-error, any “leg up” in dealing with the condition in my opinion should be enthusiastically explored.

  • Finding Support: Tony’s Story

    In January 2013 my husband was diagnosed with prostate cancer. Thankfully, after surgery he was cancer free. But in May 2015 our whole world seemed to turn upside down when he came home with a very unusual sore in his mouth. Fearing the cancer had returned, Tony went to our family doctor and was immediately ...

  • Can’t Grind Me Down

    My name is Rudy Soto. I am from the great state of Texas and have lived there all of my life. I am married to a wonderful woman, Jennifer, who is my greatest supporter. We have four awesome children—two girls and two boys who range in age from 5 to 23. My motto is Can’t ...

  • Mid-Atlantic Support Group Success

    On Saturday, February 4th, the Mid-Atlantic Support Group held its first meeting in Stafford, VA, with 10 new members attending. This meeting was supported by Vicky Starr and Diplomat Pharmacy. Carolyn Fota approached the IPPF last fall about starting a support group in her area. Her reason for wanting to start a support group was simple. ...

  • Battle Against Myself

    Last year was shaping up to be a very important year. I had just gotten an associate degree in journalism and was all set to transfer to a four-year university in the fall to pursue my B.A. On top of that, I turned 21 in February and was looking forward to savoring all the exciting ...

  • Pemphigoid Gestationis: A Patient’s Story

    Pemphigoid Gestationis is a rare autoimmune blistering skin disorder that affects an estimated 1 in 40,000-50,000 pregnancies in the United States each year. United Kingdom figures put it at 1 in 1-2 million people. You could say that each of us is one in a million! No one wants this; most have said that they ...

  • 2016 Patient Conference

    The 2016 Patient Conference has already come and gone. It was an amazing experience for attendees and presenters alike. This year’s event focused on the importance of peer support and expert research, and there was a special emphasis on oral care. The conference was full of learning, laughs, and the formation of life-changing bonds.

  • Helping Break the Cycle of Stress, Depression, and Disease

    For pemphigus and pemphigoid patients, there are several events that can trigger stress and exacerbate disease activity, even simply being diagnosed with a rare disease. The time it takes to be diagnosed, the medication itself, and how it all affects our families and friends can trigger stress and depression.