A major problem physicians and patients face when deciding on the treatment of rare diseases such as pemphigus and bullous pemphigoid is deciding on the best course to take. The decision is difficult as it is best made on the…
Miesięczne archiwum: March 2009
The Challenges in Selecting the Best Treatment for a Blistering Disease
Napisano w Issue 56 - Spring 2009
Making a Difference in the Lives of Canadians
The Canadian Pemphigus and Pemphigoid Foundation (CPPF) is committed to making a difference in the lives of Canadians both locally and nationally. At the local level, we are deeply committed to establishing and helping to sustain as many support groups…
Napisano w Issue 58 - Fall 2009
Supporting Fundraising/Supporting Awareness
When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear…
Napisano w Issue 58 - Fall 2009
Get Ready for the PEM Friends’ Away Weekend
If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients…
Napisano w Issue 58 - Fall 2009
Nobel Prize Winner and PV Patient Passes Away
It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.
Napisano w Issue 58 - Fall 2009
IPPF Website Wins Second Gold Triangle Award
The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. Will Zrnchik, Director of Communications, accepted the award on behalf…
Napisano w Issue 56 - Spring 2009
Guidelines for the Management of Pemphigus Vulgaris
The initial aim of treatment is to induce disease remission and should be followed by a period of maintenance treatment using the minimum drug doses.
Napisano w Around the Globe
Orphan Diseases: Empowering Patients, Researchers and Clinicians through a Common Health Information Registry
Registries empower patients to support their care and treatment while providing much needed data for researchers.
Napisano w Around the Globe
