David Muhwezi, the 14-year-old boy whose body is covered in wounds, has been diagnosed with a rare skin disease, Pęcherzyca zwykła. According to the International Pemphigus and Pemphigoid Foundation (IPPF), Pemphigus is an autoimmune disease that affects the skin and mucous…
Archiwum Bloga
Do you take Methotrexate to control pemphigus
Methotrexate is often used to control pemphigus and MedlinePlus lists some warnings you should be aware of. ALWAYS discuss your care with your physician before making any changes to your treatment.Methotrexate may cause very serious side effects. Some side effects…
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Autoimmune Diseases
In particular, scientists are studying the causes of these diseases, the genetic factors that make people susceptible to them, and the regulatory mechanisms that control autoantibody production. read at: http://www.niaid.nih.gov/topics/autoimmune/Pages/default.aspx
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Coalition of Skin Diseases
The Coalition of Skin Diseases (CSD) consists of several organizations that represent patients suffering from some of the 3,000 known types of skin disease. The groups share a common mission of educating patients, advocacy and supporting skin disease research that…
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Noncompliance With Topical Therapies Hampers Tx Effectiveness
Through a series of Danish studies utilizing the nation’s comprehensive electronic medical and pharmacy records system, investigators concluded that more than one in three new prescriptions for creams and ointments for dermatologic diseases is never picked up. And for those…
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Advocacy & Education: How one Person Took Her Story to the Professionals
Frequently in conversations with people suffering from one of the various “pemphigal” diseases, one is taken back by how common it is to hear that it took months to be diagnosed — and even then, most doctors and dentists only…
Napisano w Issue 62 - Fall 2010
Mindulness…Seasons of Life & Chronic Illness
A painting by Flemish painter Dr. Hugo Heyrman has forever changed how I now think of the stages of life. The name of the painting which has touched me so deeply is “City Leaf”. There is a special beauty in…
Napisano w Issue 62 - Fall 2010
Q&A: Questions from the forums, email, phone calls, and Facebook postings
Answers from the IPPF Peer Health Coaches Q: I’ve heard of some success with tacrolimus ointment for BP — thoughts? A: Some doctors report success with tacrolimus ointment for BP, that it can help limit the use of more potent…
Napisano w Issue 62 - Fall 2010
What doctors wish their patients knew
As the health-reform law takes effect over the next several years, some 32 million newly insured Americans will gain access to a regular doctor. They will soon learn what others already know: Getting the best care from your doctor requires…
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When Patients Share Their Stories, Health May Improve
A gifted artist in his early 60s, the patient was a liver transplant candidate who learned he had hepatitis B some 20 years earlier. Despite the worsening fatigue that accompanied his liver failure, he threw himself into preparing for his…
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