Health Management is Here!

The IPPF offers Health Management for patients.

Molly Stuart
International Pemphigus & Pemphigoid Foundation
(916) 922-1298
fax: (916) 922-1458
[email protected]

2701 Chata sposób #16
Sacramento urzędu certyfikacji 95825

Pemphigus and Pemphigoid Health Management Program Launched

Sacramento, CA -July 1, 2008 – Pęcherzyca międzynarodowych & Pemphigoid Foundation (IPPF) and Centric Health Resources (CHR) have partnered to create the Pemphigus and Pemphigoid Health Management Program.

The pemphigus and pemphigoid patient community now has a new support resource for patients, and a systemized way to collect and measure outcomes and measure quality of life improvements. Through the use of targeted and timely assessments and educational interventions, delivered via phone by a trained Peer Health Coach, the program aims to positively impact outcomes such as reducing the risk of steroid use, managing stress, and decreasing the number of adverse drug events, hospital visits, and missed work days. The program utilizes Centric’s proprietary health management program development process and software tools, complete with branching logic capabilities and customizable data collection and reporting features.

What is Health Management?

The IPPF and Centric believe that patients with chronic illnesses require more than just clinical therapy. Their treatment should be comprehensive, addressing every aspect of the patient’s life (including medical, work, relationships, family, stress, and financial). By focusing on the patient, positive outcomes will result for everyone: pacjentów, payers, manufacturers, and physicians. The IPPF and CHR accomplishe this through an innovative health management approach.

The GOAL of a health management program is to optimize the effectiveness of the patient-physician relationship through a comprehensive system of educational and communication INTERVENTIONS including:

  • educational materials
  • assessments
  • monitoring
  • feedback
  • health measures
  • peer health coach support

At the core of the program is CHR’s unique utilization of a Peer Health Coach (PHC). A PHC is a patient with the particular disease who is extensively trained to contact participants on a regular basis and deliver assessments (survey questions) that collect data specifically related to measure intended outcomes. The PHC delivers real-time non-medical interventions. Interventions include but are not limited to education, counseling, and enhancing the communication between the patient and physician and care team.

These interventions are designed to drive BEHAVIOR CHANGE; that is, more and better decisions by the patient related to their health, such as nutrition, protocol adherence, regular health monitoring, recognizing and dealing with stress, and the importance of addressing health issues with their physician and care team.

The RESULT of positive behavior change benefits all constituents involved in the patient’s care:

  • Patientimproved quality of life
  • Payerlower lifetime cost through compliance and fewer adverse events
  • Physician and care teama healthier, more informed patient
  • Manufacturercompliance, retention, and loyalty

For additional information on the Health Management Program, contact Molly Stuart or visit

About the International Pemphigus and Pemphigoid Foundation: The IPPF is the pre-eminent global organization dedicated to improving the quality of life of all people diagnosed with, or affected by, pemphigus or pemphigoid. The IPPF provides direct access to innovative and effective support that promotes the very best health care, improves quality of life, stimulates community resources, advocates for favorable government policies, accelerates the pace of scientific discovery and is the world’s best source of information on pemphigus and pemphigoid. The IPPF is compassionate in understanding, tireless in service, and relentless in advocating. One person at a time, the IPPF makes a difference, building a community of care and hope.

About Centric Health Resources ( Centric Health Resources is a nationwide organization serving the specialized needs of individuals with certain rare and chronic disorders, along with their families, specialist physicians and healthcare payers. As a specialty pharmacy employing patient centered health management services, Centric works with patient advocacy organizations, pharmaceutical companies, biotech firms and managed care organizations to deliver prescribed therapies and specialized health services.


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The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.