Numbers Don’t Lie

The IPPF continues to grow and reach out to new members world-wide.

Our Community Forums include

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areas for pemphigus, pemphigoid, pets, people under 30, Spanish speakers, and more!

Our Facebook page has almost 150 fans! Search for us (International Pemphigus & Pemphigoid Foundation) or visit!

People from all over the world are creating sites online to help them connect with others. On Facebook alone there are 5 or so pages where pemphigus and pemphigoid patients are interacting.

No matter where you go, you have the opportunity meet with our ever expanding circle of friendsfriends with a common hope and an uncommon bond!

PHCPeer Health Coaches

CasesRequests for help to the IPPF

ActivitiesEverything from emails to phone calls to patient interactions made by the IPPF.

Forum VisitsOver 90 people are looking at the forums each month.

Double the Difference RateDuring 2009 we were able to reach 63% of our $200,000 Matching Gift campaign.

Active NL SubscribersNumber of people receiving the printed NL.

Website Traffic Pages ViewedOver 150,000 pages were looked on our Informational Site ( We anticipate over 500,000 page views for all our sites in 2010.

Our CommitmentWe work day in and day out, sometimes after hours and on weekends, to provide the support P/P patients and their families deserve!

Napisano w Issue 60 - Spring 2010
The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.