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Autumn Brings PEM Friends Together

On November 6, 2009, the UK’s PEM Friends met for their regular Autumn Lunch which is always held in London. As usual, it was in Peter Jones, Sloane Square. The management is always extremely helpful and we have all the space we need for a gathering of between 12 and 20 people, and are never hurried or bothered in any way.

This year’s gathering was as enjoyable as ever, although at the last minute five people sent text messages to say they couldn’t make it. We were nevertheless a party of fourteen and as ever, new friendships were forged and old friendships rekindled.

It’s always so helpful and reassuring to be with people who understand what it’s like to have active pemphigus or pemphigoid. Those attending a lunch for a second or third time exhibit such an improvement in their bearing, demeanour and

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self-confidence. I believe this comes from having developed a greater understanding and knowledge of their condition and more importantly, having met up with others in this unique club!

Dr. Jane Setterfield, who has both private and NHS patients in London, was our guest. Unfortunately she was held up at the hospital and couldn’t join us until fairly late on, but those still present had a most illuminating chat with her. As with Dr. Karen Harman, Dr. Setterfield is so generous with her knowledge and answered all our queries in great depth.

From PEM Friends funds, the guest dermatologists are given a £50 Marks & Spencer Gift Voucher as a token of our appreciation.

by Carolyn Blain
PEM Friends (UK)

Publicado em Issue 60 - Spring 2010

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The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.

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