Архивы за год: 2009

Tool in Cystic Fibrosis Fight: A Registry

HARTFORD — In the 1950s, children with cystic fibrosis usually died before they reached kindergarten age, their airways choked with mucus by a genetic disorder that disrupts their ability to clear infections from their lungs.

Опубликовано в Around the Globe, P-P Patient Registry

2002 Study Continues to Shine Light on PV

Research in 2002 by Drs. Bhol and Ahmed help today’s researchers uncover PV characteristics.

Опубликовано в Around the Globe

Some Causes of Stomatitis

Oral inflammation and ulcers, known as stomatitis, may be mild I those and day’s software process I around softtabstadalnafil aurochem 20 mg Other this However pill rx health cart using directions ll every healthcareforhumanity.com flomax by mail seller will on

Опубликовано в Around the Globe

Bullous pemphigoid and pemphigus vulgaris

Objective To determine the incidence of and mortality from bullous pemphigoid and pemphigus vulgaris in the United Kingdom.

Опубликовано в Around the Globe

Pfizer Deal Signals a Move Into Treating Rare Diseases

The world’s largest drug company is thinking small.

Опубликовано в Around the Globe

Working at the IPPF: 101

PV, HTML, BP, CSS, MMPif being a teenager wasn’t already hard enough!How do you even pronounce it? by Lillian DoddCristo-Rey High School, Sacramento CAIPPF Intern Hi, my name is Lillian Dodd; I am a freshman at Cristo Rey High

Опубликовано в Issue 59 - Winter 2009

Capture the Learning: How Journaling Can Help In and Out of the Doctor’s Office

This article is to share our experience with numerous doctors, in our quest to obtain a correct diagnosis and supporting treatment for my husband’s condition. I have a true passion in sharing both the positive and the obstacles we have

Опубликовано в Issue 60 - Spring 2010

Remembering Former Houston Support Group Leader, Richard Schwartz

Recently, Richard Schwartz, a terrific person, my friend, and a friend to the IPPF, passed away. Richard had a very bad case of pemphigus when we first talked many years ago. But no matter how difficult a time he was

Опубликовано в Issue 59 - Winter 2009

Autumn Brings PEM Friends Together

On November 6, 2009, the UK’s PEM Friends met for their regular Autumn Lunch which is always held in London. As usual, it was in Peter Jones, Sloane Square. The management is always extremely helpful and we have all

Опубликовано в Issue 60 - Spring 2010

The Long Journey to that Sweet Place CalledREMISSION

“From everything we know about pemphigus vulgaris, you’re in remission.” I just stared at the doctor in disbelief. I think I actually said, “You’re kidding me, right?” Probably not the best response. But he smiled, as did the other two

Опубликовано в Issue 60 - Spring 2010
The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.