The Robert Wood Johnson Foundation, through its Pioneer Portfolio, has awarded Kaiser Permanente $8.6 million to develop one of the world’s largest and most diverse repositories of genetic, environmental and health data.
The use of organized chronic illness care management processes (CMPs) is discussed in this article.
Centric`s second annual ultra orphan conference, with Pharmaceutical Executive Magazine serving as media partner for 2009 event, offers industry guidance CHESTERFIELD, Mo.
Randomized open comparative trial of dexamethasone-cyclophosphamide pulse and daily oral cyclophosphamide versus cyclophosphamide pulse and daily oral prednisolone in pemphigus vulgaris.
Nestled in the pristine Swiss Alps, the Hotel Allegro in the city of Berne, Switzerland was the location for an international meeting discussing all aspects of pemphigus. The meeting consisted of 3 days of intense scientific discussions. The meeting was…
What happened to the lazy days of summer! After slicing and drying almost 300 pounds of tomatoes from my garden, it is a happy frenzy when I get to the IPPF office – which is, at least, air conditioned. Will…
Janet said, “I thought I would try to start the Foundation. Unfortunately, I was not prepared for the enormity of the task, and found it all quite over-whelming; so I gave it up; though I continued to look for others…
Last year I signed up for the IPPF’s Health Management Program with the idea that I would benefit the Foundation with vital information and as a result I would learn more about my disease. A couple of weeks ago a…
With Pemphigus and Pemphigoid (P/P) the “captain of the ship” regarding your care is usually a Dermatologist. After a diagnosis is made, then perhaps there is an initial telephone call or letter sharing information with your primary care physician, but…
The Office of Orphan Products Development (OOPD) dedicates its mission to promoting the development of products that demonstrate promise for the diagnosis and/or treatment of rare diseases or conditions. In fulfilling that task, OOPD interacts with the medical and research…
