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New IPPF BOD Member Brings Vast Experience to the Mix

The IPPF is pleased to welcome the newest member to our Board of Directors. Mindy Unger is a mother of three children, ages 19, 16, and 9 and is actively engaged in a number of philanthropic activities. Mindy graduated from

Опубликовано в Issue 58 - Fall 2009

Advances in Pemphigus Research

The IPPF has always been instrumental in supporting clinical and scientific meetings. In addition to supporting the American Academy of Dermatology’s (AAD) Symposium on Autoimmune Blistering Diseases, the IPPF is co-sponsoring the International Pemphigus Meeting in Bern, Switzerland in June

Опубликовано в Issue 58 - Fall 2009

Raising Awareness in Boston: Yankee Dental Congress

Each year, the Massachusetts Dental Society, in cooperation with the dental societies of Connecticut, Maine, New Hampshire, Rhode Island, and Vermont, hosts the Yankee Dental Congress (YDC).

Опубликовано в Issue 58 - Fall 2009

Talking With Others About Your Diagnosis

Painful and scary symptoms no one seems to be able to explain or understand; a diagnosis you have never heard of before; understanding the actual illness; treatment options most of which have not been FDA approved or may be considered

Опубликовано в Issue 58 - Fall 2009

Advocacy of the IPPF Through the National Health Council

A member of our Board of Directors and I attended the National Health Council’s (NHC) annual meeting February 11-13, 2009.The National Health Council sets operating Standards of Excellence for its members such as the IPPF and over 50 of the

Опубликовано в Issue 58 - Fall 2009

Supporting Fundraising/Supporting Awareness

When the economy was crashing, I held my first fundraiser/awareness gathering knowing that a majority of the invitees were retirees. I’d never done anything like this before, but people who know me know when I believe in something, I am clear

Опубликовано в Issue 58 - Fall 2009

Get Ready for the PEM FriendsAway Weekend

If you are interested in a relaxing weekend getaway, perhaps in the scenic Ashton-under-Lyne countryside, consider spending it with the PEM Friends (UK) June 27-28, 2009. Hosts Raymond and Carolyn open up their beautiful inn and stables to P/P patients

Опубликовано в Issue 58 - Fall 2009

Nobel Prize Winner and PV Patient Passes Away

It was with great sadness that I learned of the December 2008 passing of Harold Pinter, one of the world’s leading playwrights. Harold, 78, was a highly respected actor and poet in the UK.

Опубликовано в Issue 58 - Fall 2009


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.