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Supporting Each Other and Planning the 2009 Annual Meeting | International Pemphigus Pemphigoid Foundation

Supporting Each Other and Planning the 2009 Annual Meeting

The LA Support Group got together on October 11, 2008, at the Westside Pavilion in Los Angeles, California. The Group was joined by UCLA’s Dr. Jennifer Haley and IPPF Founder and Director of Patients Services & Education, Janet Segall.

The 15 attendees enjoyed casual conversation and listened as Dr. Haley answered their questions regarding the medical aspects of P/P. Janet spoke about the upcoming Annual Meeting to be held in Los Angeles, Calif., USA, April 24-26, 2009. Janet encouraged the group to spread the word in their communities about the meeting and invite family and friends to the meeting and/or the celebration dinner. A request for the Group to search out in-kind donations from local and chain businesses was made.

Many IPPF members and friends in the Los Angeles area, and others who have a talent for asking, have solicited loads of great gifts and auction items from local treats like a stay on the Queen Mary, to internet gift certificates, flowers, fruit, delivered treats and care products. Everyone’s help is needed to make this a special event for all. If you are interested in making a donation, contact Molly, IPPF CEO, at molly@pemphigus.org or (916) 922-1298.

The LA Support Group would like to thank Dr. Haley and Janet Segall for their participation.

Posted in Issue 54 - Fall 2008
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The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.

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