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By Rebecca Berman, Janet Segall and Jean-Claude Bystryn, M.D. from The National Pemphigus Foundation and The Ronald O. Perelman Department of Dermatology, New York University School of Medicine, New York, NY. February 17, 1999

As many of you know, we recently conducted a survey of persons with pemphigus to find out 1) which treatments were most commonly used, 2) which appeared to be the most effective, and 3) which were most often associated with side effects. The survey was conducted by means of a questionnaire enclosed in the Fall 1998 issue of the National Pemphigus Foundation newsletter, the Quarterly. The questionnaire was also sent to all individuals who responded to a notice on the NPF website.A total of 110 responses were received. This number is impressive, taking into account the rarity of pemphigus. We thank all participants for their collaboration.

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By Jennifer Romero, Licensed Clinical Social Worker

If you are a person with pemphigus whose condition is severe enough to prevent you from doing any gainful work activity, you could be eligible for assistance from the Social Security Administration (SSA).

Pemphigus is described in the SSAU Publication No. 64-039 Disability Evaluation Under Social Security, Section 8.03 (page 58) listing of eligible impairments. The language the SSA uses is: “Pemphigus, erythema multiform bullosum, bullous pemphigoid, dermatitis herpeti–formis. With extensive lesions not responding to prescribed treatment.”