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Most individuals have a primary care physician. Many have a dentist. Many women have an OB/GYN for women’s health.  There are a variety of specialists’ that one may have: Internists, Ear/Nose & Throat (ENT), Ophthalmologists, Rheumatologists, and more.

When you are being treated for any form of pemphigus or pemphigoid (P/P) and are on any of the various treatments it is best to keep all of your doctors in the loop.  Each one should know of your present condition and the medications that you are taking as this can affect your diagnosis with each specialty examination.

If you will be considering an invasive surgical procedure of any kind, (including dental work) both your surgeon (and dentist) and your dermatologist need to be in touch.  Usually, your P/P medications can be increased for a few days prior and a few days afterwards to prevent any flare-ups.

Also advise your dental hygienist when you are having your teeth cleaned, so that he/she can be extra gentle with your gums.  (Many Hygienists are just now learning about P/P through the IPPF Awareness Campaign!)

When you are a new patient at a doctor’s office and filling out the information sheet, be sure to list all the medications you are taking for your P/P condition.  Your new doctor will then ask you about them and be aware of your situation.

Remember, when you need us we will be in your corner!

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With Pemphigus and Pemphigoid, painful oral lesions frequently occur in the mouth and throat causing difficulty with drinking and eating solid foods. Let’s face it, it can be just painful! Assessing your individual tolerance to foods and adjusting what you are eating will enable you to better understand which foods to eat and which foods to avoid. For many, highly seasoned, acidic, or salty foods are irritating and those foods that are dry, sticky, or abrasive can be difficult to swallow. Extremes in temperatures of liquids or solids such as ice cream or hot chocolate may cause pain for some. In the case of severe mouth sores, use a blender or food processor is accessible.

Here are a few helpful hints to remember:

  • Drink liquids through a straw.
  • Cook coarse or hard foods, such as vegetables until they are soft and tender.
  • Soften or moisten foods by dipping them in gravies or cream sauces.
  • Take a swallow of a beverage with solid food.
  • Eat small frequent servings rather than a large amount of food at one time.
  • Rinse your mouth with water, peroxide, or Biotene during and after eating to help
  • Remove food and bacteria and to promote healing.

Having oral lesions can present many challenges including; pain management, oral hygiene, nutritional intake, and your overall health. Speak with your doctor about ways to help relieve the pain and ensure that they are monitoring you blood sugar levels if you are taking systemic steroids. Make sure that you inform your dentist of your condition and require them to use caution when treating you.

If you have difficulty swallowing and find yourself choking on food, see your doctor immediately. Ask to be seen by an ENT so they can help determine the extent of your disease activity. The mouth is often one of the most difficult areas to treat and requires diligence. Changing your behavior and habits can be the biggest “pain” but will eventually pay off. If you need help, encouragement, or suggestions…just “Ask a Coach“!

When you need us, we are in your corner!

Marc Yale – Peer Health Coach