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If you’re like me you do a lot of shopping online. It’s convenient. It’s safe. And sometimes the prices just can’t be beat. To make sure I get a great deal from a reputable company, I do most of my shopping through AmazonSmile (smile.amazon.com, part of Amazon.com).

My AmazonSmile homepage

My AmazonSmile homepage

AmazonSmile (smile.amazon.com) is a simple and automatic way for you to support the IPPF every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to the IPPF.  To shop at AmazonSmile simply go to smile.amazon.com from the web browser on your computer or mobile device. You may also want to add a bookmark to smile.amazon.com to make it even easier to return and start your shopping at AmazonSmile.

There are tens of millions of products on AmazonSmile are eligible for donations. You will see eligible products marked “Eligible for AmazonSmile donation” on their product detail pages. Recurring Subscribe-and-Save purchases and subscription renewals are not currently eligible.

The circled area lets you know the product is an AmazonSmile participating product.

The circled area lets you know the product is an AmazonSmile participating product.

It’s easy to use because you use the same account on Amazon.com and AmazonSmile(smile.amazon.com). Your shopping cart, Wish List, wedding or baby registry, and other account settings are also the same. When you visit AmazonSmile (smile.amazon.com) for the first time you need to select the International Pemphigus Foundation to receive donations from eligible purchases before you begin shopping. Amazon will remember your selection, and then every eligible purchase you make at smile.amazon.com will result in a donation to the IPPF.

amazonsmile

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Season’s Greetings! It’s that time of the year again and here at the office we are getting ready for 2014. But we still have another month to go, and that means finishing up 2013 with a bang!

Kate Frantz is settling in and getting the Awareness Campaign up and running; Monique Rivera has been busy processing donations and keeping the information flowing; Kevin Cruz has been working on patient and caregiver handbooks; Isaac Silva has been doing some web site work while learning more about the IPPF; Marc Yale and the Peer Health Coaches have been helping patients at an astonishing rate; and the Board of Directors and our Medical Advisory Board continue to be instrumental in shaping our future.

2013 Holiday Fundraiser. This fundraising season is shorter than usual with Thanksgiving falling where it did, but so far this has been one of our best efforts in recent years. Along with first-time supporters like Rana, Hartmut, Chris, Patricia, and Bob it has been great to see the names of long-time supporters like Lillie, Joan, Alice, Yvette, Carol, Ellen, Jay, Sonia, Ed, Therese, and dozens of others who continue to support our important work. If you have not donated there is still time. And make sure to date your check accordingly so you get your 2013 tax-deduction!

Awareness and Education. If you missed the August buzz on Facebook, Rebecca Oling and MAB member Dr. Animesh Sinha were guests on Good Morning New Haven (Connecticut) talking about pemphigus, pemphigoid, and the IPPF. She followed that up with a trip to Houston, Texas, to participate in a 4-hour long video shoot for IPPF that will be added to the Giving Library (www.givinglibrary.com). Add to that scouting the globe for patient educators, helping people on Facebook, traveling to sit with patients and their families, working full time, and being “Mom, wife, daughter, and sister” and you can see why Rebecca is my hero!

What do you get someone turning 20? How about a party in Chicago! The IPPF celebrates its 20th Anniversary in 2014 and we are planning an evening of food, friends, and fun at the 2014 Patient Conference. On Saturday evening (April 26, 2014) join us for dinner, our Annual Awards, and an Anniversary tribute followed by a Casino Night fundraising event. More information will be available soon! Proceeds go directly to our Patient Support programs. If you’re in Chicago, I hope to see you there!

2014 is now a couple minutes closer than it was before you read this letter. With Autoimmune Disease Awareness Month, Rare Disease Day, Pemphigus & Pemphigoid Education and Awareness Month (New Jersey…come on NJ SJR77!), 17th Annual Patient Conference, and more on the horizon – we need your help! If you’re interested in spreading the word and mission of the IPPF, call or email me and let’s do this together!

Thank you, Happy Holidays, and from my family to yours – Happy New Year!