1. Keep a log of disease activity – It’s easier to measure if you can see it on paper.
2. Amount – Count the number of blisters, their location and write them in your log. If you have less blisters than before then you are improving.
3. Frequency – Take note of the blisters and how long they take to resolve. If they are clearing up quicker than before then it is showing improvement.
4. Fatigue – Pemphigus and Pemphigoid cause fatigue. A clinical sign of improvement should be less overall fatigue.
5. Talk to you Doctor – Ask your doctor what signs they look for that indicate improvement. Working together with your physician to reach remission should be your biggest priority.
Improvement is a step-by step process and can be slow. If you follow these tips you may just find that you are improving, even if it’s just a little at a time. Knowing that you are improving will help you realize that you are in control and on the road to remission.
Have other questions about measuring improvement? Just “Ask a Coach! Remember, when you need us, we are in your corner!