As the organization expands its activities by strengthening its patient support programs and by pivoting into therapy access/reimbursement issues and R&D and product development, volunteerism will become critical. For small organizations like ours, volunteers are a driving force. Our patients give us inspiration, and our volunteers give us propulsion. I ask you now to think about how you can contribute to the foundation.
We have created different types of volunteer positions to match people’s interests and lifestyle preferences. You also can rotate through different positions. Anyone can contribute – not just patients, but also caregivers, friends, anyone that feels strongly about helping patients with rare/neglected diseases, wants to give back with their time and expertise, and wants to help grow a small organization to deliver greater impact. We are looking to fill positions on the CEO’s Executive Board (“CEO’s senior staff”), Special Projects Contributors, and General Volunteers. Serving in one of these roles could position someone for greater leadership opportunities in the Foundation. Please contact us if you would like to volunteer, or even to just brainstorm what opportunities exist to best utilize your talents and expertise. If you have a skill or an interest, we will find something that works for you. (See page 4 for a description of volunteer roles).
Someone from the Red Cross recently told me that around 95% of their “workforce” consists of volunteers. We can do the same. Let’s leverage the power of the IPPF community to catalyze positive change.