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Yearly Archives: 2009

Bullous pemphigoid and pemphigus vulgaris

Objective To determine the incidence of and mortality from bullous pemphigoid and pemphigus vulgaris in the United Kingdom.

Posted in Around the Globe

Pfizer Deal Signals a Move Into Treating Rare Diseases

The world’s largest drug company is thinking small.

Posted in Around the Globe

Working at the IPPF: 101

PV, HTML, BP, CSS, MMPif being a teenager wasn’t already hard enough!How do you even pronounce it? by Lillian DoddCristo-Rey High School, Sacramento CAIPPF Intern Hi, my name is Lillian Dodd; I am a freshman at Cristo Rey High

Posted in Issue 59 - Winter 2009

Remembering Former Houston Support Group Leader, Richard Schwartz

Recently, Richard Schwartz, a terrific person, my friend, and a friend to the IPPF, passed away. Richard had a very bad case of pemphigus when we first talked many years ago. But no matter how difficult a time he was

Posted in Issue 59 - Winter 2009

Autumn Brings PEM Friends Together

On November 6, 2009, the UK’s PEM Friends met for their regular Autumn Lunch which is always held in London. As usual, it was in Peter Jones, Sloane Square. The management is always extremely helpful and we have all the

Posted in Issue 60 - Spring 2010

The Long Journey to that Sweet Place CalledREMISSION

“From everything we know about pemphigus vulgaris, you’re in remission.” I just stared at the doctor in disbelief. I think I actually said, “You’re kidding me, right?” Probably not the best response. But he smiled, as did the other two

Posted in Issue 60 - Spring 2010

From the Top

I was in Tennessee this week, seeing the colors of the trees burn across the ridges, and feeling the fall induced opportunity to feel gratitude. As you get this, we’ll all be deep into the holidays and winter, giving us

Posted in Issue 60 - Spring 2010

Public Database Is Urged to Monitor Drug Safety

What could be done to prevent another Vioxx? This pain medication for arthritis became a blockbuster after its introduction in 1999, only to be taken off the market in 2004 when a study linked the drug to an increased risk

Posted in Around the Globe

A Genetics Company Fails, Its Research Too Complex

DeCode Genetics, a pioneering company that used the Icelandic population as its guinea pigs in detecting disease-causing mutations, filed for bankruptcy on Tuesday.

Posted in Around the Globe

Rituximab offers hope: Treatment provides steroid-sparing response in refractory bullous pemphigoid

Durham, N.C. — Dermatologists at Duke University using rituximab (Rituxan, Genentech) for the management of patients with treatment-resistant bullous pemphigoid (BP) have found that this anti-CD20 monoclonal antibody allows corticosteroid-dependent patients to successfully taper their immunosuppressive therapy.

Posted in Around the Globe


The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.