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Sick boy moved to IHK

David Muhwezi, the 14-year-old boy whose body is covered in wounds, has been diagnosed with a rare skin disease, Pemphigus. According to the International Pemphigus and Pemphigoid Foundation (IPPF), Pemphigus is an autoimmune disease that affects the skin and mucous

Posted in Around the Globe

Do you take Methotrexate to control pemphigus

Methotrexate is often used to control pemphigus and MedlinePlus lists some warnings you should be aware of. ALWAYS discuss your care with your physician before making any changes to your treatment.Methotrexate may cause very serious side effects. Some side effects

Posted in Around the Globe

Autoimmune Diseases

In particular, scientists are studying the causes of these diseases, the genetic factors that make people susceptible to them, and the regulatory mechanisms that control autoantibody production. read at: http://www.niaid.nih.gov/topics/autoimmune/Pages/default.aspx

Posted in Around the Globe

Noncompliance With Topical Therapies Hampers Tx Effectiveness

Through a series of Danish studies utilizing the nation’s comprehensive electronic medical and pharmacy records system, investigators concluded that more than one in three new prescriptions for creams and ointments for dermatologic diseases is never picked up. And for those

Posted in Around the Globe

MindulnessSeasons of Life & Chronic Illness

A painting by Flemish painter Dr. Hugo Heyrman has forever changed how I now think of the stages of life. The name of the painting which has touched me so deeply is “City Leaf”. There is a special beauty in

Posted in Issue 62 - Fall 2010

Q&A: Questions from the forums, email, phone calls, and Facebook postings

Answers from the IPPF Peer Health Coaches Q: I’ve heard of some success with tacrolimus ointment for BPthoughts? A: Some doctors report success with tacrolimus ointment for BP, that it can help limit the use of more potent

Posted in Issue 62 - Fall 2010

What doctors wish their patients knew

As the health-reform law takes effect over the next several years, some 32 million newly insured Americans will gain access to a regular doctor. They will soon learn what others already know: Getting the best care from your doctor requires

Posted in Around the Globe

When Patients Share Their Stories, Health May Improve

A gifted artist in his early 60s, the patient was a liver transplant candidate who learned he had hepatitis B some 20 years earlier. Despite the worsening fatigue that accompanied his liver failure, he threw himself into preparing for his

Posted in Around the Globe

Fight to defeat US pemphigoid pemphigus disease

Pemphigus, pemphigoid, strange names, unknown names called orphan diseases that affect the skin and mucous membranes. This is because one of their own, Oceane was reached, that young WJC (Youth City Council) decided to mobilize and motivate as many people.

Posted in Around the Globe

Important Safety Information

Managing Side Effects Radiation therapy Skin problems: Try not to scratch or rub the treated skin Chemotherapy Nausea and vomiting: Have small meals or snacks throughout the day instead of 2 or 3 large meals RITUXAN (a targeted therapy) Fever,

Posted in Treatment and Medication

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The P/P Registry has been approved by the Western Institutional Review Board (WIRB) and is actively enrolling participants.

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