This person heads up a “department” or initiative under the CEO. Examples include managing our patient support programs, planning and running our annual meeting, editing our newsletter, running fundraising events, and developing an R&D strategy. Other areas include finance/accounting, collaborations, and project management. The commitment would be for one year or the duration of the initiative (whichever is shorter). We are open to ideas for new “departments” and initiatives, and want to tailor a position to an individual’s talents and interests. This role is good for people who are operationally oriented and want a significant role within the foundation.
Special Project Contributor
The Special Project Contributor (SPC) role provides a way for people who have special expertise, resources, and access to contribute to the organization in the frame of a short time commitment and specific scope. It allows individuals to make a substantive contribution that fits their interests and lifestyle. Example projects include: competitive landscape analysis, review of clinical guidelines, exploration of a specific clinical care question, legal analysis of a specific issue, building a data management platform for our patient registry, crafting a media strategy, helping set up and negotiate an external collaboration, developing a market access/reimbursement advocacy strategy, and setting up a fundraising initiative (e.g., a silent auction). This role is good for people that have a special expertise they would like to leverage in the context of a short project. SPCs are encouraged to propose their own projects as well.
General volunteers can contribute across a wide range of initiatives and events. Example areas to contribute include website design, newsletter/media, printing, art design, annual meeting preparation and on-site help, event planning, accounting, and community fundraisers (e.g., 5K run). This role provides an opportunity for anyone to contribute with as much or as little time as they can. We encourage those interested to tell us about their talents and interests, and we are happy to find a way for them to contribute.
Sonia Tramel (accounting/tax-prep), Maeve Norton (graphics and design), Michelle Atallah (research and development), and Lee Heins (patient support).