The IPPF is reviving support in the San Francisco Bay Area! This is a FREE event and patients, caregivers, and interested individuals are encouraged to attend. IPPF MAB member Dr. M. Peter Marinkovich (Stanford University) and SF Support Group leader…
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Got Milk? You Don’t Need It.
By Mark Bittman Drinking milk is as American as Mom and apple pie. Until not long ago, Americans were encouraged not only by the lobbying group called the American Dairy Association but by parents, doctors and teachers to drink four…
ELISA – Peace of Mind by the Numbers
by Kirsten R Bellur It is almost four years ago that, after many failed attempts, I was finally accurately diagnosed with Pemphigus. In the face of that solemn pronouncement, I was told there was good news: it was only Foliaceous,…
Explaining Your Autoimmune Disease (AID) is not AIDS
Just trying to take in all of the above is totally overwhelming. Now, how do you explain it all to others?
文章分类 Health and Lifestyle
The Case for Continued Public and Private Commitment to Rare Disease Research and Development
This is a paper written by a high school student with PV and was mentioned in the Spring 2009 Quarterly.
文章分类 Health and Lifestyle
Loss of Control: Your Choice
No one asks to be “chosen” for chronic illness and/or pain. There are, however, choices you can make which can either empower you or allow you to be a victim of circumstances. Not feeling you are in total control does not…
文章分类 Health and Lifestyle
Pregnancy & Pemphigus Can Go Together
by Fariba Vadpey It was March 19, 1991, that they diagnosed me with pemphigus. It was the fourth appointment in the dental office. I came back home and I noticed a lesion in my mouth. The doctor didn’t know what…
文章分类 Health and Lifestyle
Herbal Supplements and Autoimmune Patients
Potential Adverse Effects of Some Herbal supplements on Patients with Autoimmune Diseases By Victoria P. Werth, M.D. Herbal supplements are used widely, and some of these supplements may stimulate the immune system in ways that could be harmful for people…
文章分类 Health and Lifestyle
Pemphigus in Italy
by Anna Lisa Riccardi Pemphigus patients in Italy experience problems very similar to patients in other countries. The first problem consists in being correctly and quickly diagnosed. If the disease appears only in the mouth there are great chances that…
文章分类 Health and Lifestyle
Putting IVIg on the Fast Track
by Kristen R. Bellur Whether it is from a PPO or HMO plan, there is, unfortunately, no single path to follow to achieve a streamlined, simplified, and expeditious approach to obtain IVIG – on a "fast-track" that would work for…
文章分类 Health and Lifestyle
