by Rosalind Joffe Focus On What You Can Control. You may not be able to control the course of your illness. You can control the direction you take and the choices you make regarding that illness in the workplace. View…
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Coping with Adjunctive Medications
by Jennifer Williams As all pemphigus and pemphigoid sufferers are quite aware, high doses of steroids are generally used in the first phase of treatment to control the blistering. Often to relieve the unpleasant side effects of such great doses,…
文章分类 Health and Lifestyle
Nutrition, Diet & Pemphigus
In order for patients with pemphigus and pemphigoid to get control of their disease, there are certain drugs that patients must take. Prednisone is the first drug of choice for treating these diseases, and immunosuppressive drugs are often given as…
文章分类 Health and Lifestyle
A PV Success Story (two parts)
by Barry Kratz My name is Barry, and I was diagnosed with PV in June 1992 at the age of 22. I have been asked to share my story and give some insight to help overcome this sometimes-debilitating disease. I…
文章分类 Health and Lifestyle
Handling Prednisone’s Side Effects Naturally
by Janet Segall, IPPF Executive Director In order for patients with pemphigus and pemphigoid to get control of their disease, there are certain drugs that patients must take. Prednisone is the first drug of choice for treating these diseases. Immunosuppressive…
文章分类 Health and Lifestyle
Coping with Chronic Illness: in Control of Our Selves
The great thing about being young for the fortunate among us, was that there was nothing wrong with us that couldn’t be fixed. Teeth could be straightened by braces, eczema solved by salve, infected tonsils removed. Fairytales were plans. Flaws…
文章分类 Health and Lifestyle
How to Spot Health Fraud
NOTE: The following article was provided by the U.S. Food and Drug Administration (www.fda.gov). by Paula Kurtzweil, Public Affairs Staff, FDA You don’t have to look far to find a health product that’s totally bogus–or a consumer who’s totally unsuspecting.…
Secrets of the Social Security System
By Jennifer Romero, Licensed Clinical Social Worker If you are a person with pemphigus whose condition is severe enough to prevent you from doing any gainful work activity, you could be eligible for assistance from the Social Security Administration (SSA).…
Smoothies!!
Cold, refreshing and nutritious, smoothies are a great way to soothe a sore throat or just enjoy a warm summer day. All you need is a blender and an imagination (We sparked our imagination by visiting our local smoothie shops…
Salt: Are You Getting Enough?
Since Prednisone can cause water retention and puffiness, we need to keep our sodium chloride levels down, but not totally eliminated. Most people have been conditioned to a salty taste by nutrient-poor refined carbohydrates commonly known as snack foods. Sodium…
