Are you looking for a way to contribute first-hand to a larger goal that may help you and other people living with pemphigus/pemphigoid (P/P) Many medical professionals agree that since P/P is rare, gathering accurate and complete information on the…
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Appreciation for What is Unfolding
Many of you already know that my garden is a fundamental aspect of my life. I find each dimension of the garden — the change of seasons, the plants that open in the morning and close at night, the patch…
HMP Q&A
Q: Are there incentive for drug companies to pursue better drugs? A: The Aspreva CellCept study was a good example of how things work in the market of rare diseases. Company will not try to find new drugs unless there is…
From the Top
Many of you already know that my garden is a fundamental aspect of my life. I find each dimension of the garden — the change of seasons, the plants that open in the morning and close at night, the patch…
2008 Annual Meeting Q&A
Q: Are there any statistics within the U.S. on how many have our diseases? A: Estimates have been made but there is no good grasp on the actually number. Q: If an individual already has an autoimmune disease, is that…
Dallas was Delightful!
With the spectacular view from the 14th floor of the T. Boone Pickens Biomedical Building on the UT Southwestern’s campus, Dallas, the IPPF Annual Meeting opened with Dr. Grant Anhalt, Johns Hopkins. Dr. Anhalt helped new patients learn about their…
PV and Cocaine Don’t Mix
The Journal of the European Academy of Dermatology and Venereology (JEADV) printed, in its Letters to the Editor section, a case study from the Department of Dermatology, Valencia University General Hospital, in Spain. Pemphigus Vulgaris Associated with Cocaine Snorting. It…
BP Pilot Trial Compares Omalizumab to Prednisone
A research team, led by Janet Fairley, M.D., at the University of Iowa, is investigating the role of IgE-type antibodies in bullous pemphigoid. Most of the previous work in pemphigoid has focused on IgG antibodies and while the presence of…
A Friendly Trip to Baltimore…
When it comes to action, this group definitely puts the pedal to the metal… I am so grateful to all of you that offered me input about Dr. Grant Anhalt, getting around the Baltimore area, lodging suggestions, and most of…
PEM Friends Away Weekend
The PEM Friends 2008 away weekend here in sunny Ashton-under-Lyne, Gtr. Manchester, will take place over three days and two nights, June 27th-29th, 2008. Happily, Janet Segall, founder of the International Pemphigus & Pemphigoid Foundation in America, is expecting to…
