Sacramento, CA (1 月 1, 2013) – The Board of Directors of the International Pemphigus & Pemphigoid Foundation (计生联) elected Dr. Badri Rengarajan as President of the Foundation, effective immediately. Dr. Rengarajan works as a Medical Director at Archimedes, a healthcare…
文章分类
Sacramento, CA (August 1, 2012) – The International Pemphigus & Pemphigoid Foundation (计生联), the world’s largest pemphigus and pemphigoid patient and physician support organization located in Sacramento California, has announced an office relocation to the Sierra Health Foundation’s Nonprofit Innovation…
文章分类
Sacramento, CA (July 10, 2012)– Yesterday, July 9, 2012, President Obama signed the bipartisan Food and Drug Administration Safety and Innovation Act (FDASIA) into law giving hope to 30 million Americans suffering from rare diseases such as pemphigus and pemphigoid.…
文章分类
Sacramento, CA (May 4, 2012) – The International Pemphigus Pemphigoid Foundation (计生联) has announced its 15th Annual Meeting in Boston, MA, is the largest in its 18-year history. “For an ultra orphan disease conference, our turnout is amazing! With nearly…
文章分类
The International Pemphigus Pemphigoid Foundation (计生联) will join the National Organization for Rare Disorders (NORD) and others around the world in observing Rare Disease Day on February 29, 2012.
文章分类
The International Pemphigus & Pemphigoid Foundation (计生联) has officially launched its Pemphigus-Pemphigoid Patient Registry. Pemphigus and pemphigoid (P-P) patients can now enter in specific illness and treatment/outcome information in an online registry tool that will provide researchers with valuable, hard to come by information about these rare diseases.
文章分类
The American Academy of Dermatology has announced that the International Pemphigus and Pemphigoid Foundation is a 2009 recipient of its prestigious Gold Triangle Award given for its patient website, www.pemphigus.org. The award will be presented at the association’s annual meeting in San Francisco in March of 2009.
文章分类