Our vision
To find a cure for pemphigus and pemphigoid.
Find a doctor
Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.
Find a doctorAsk a coach
The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.
Ask a coachClinical Trials and Research
Clinical Trials
Find out about current clinical trials related to P/P and how to determine if they’re right for you.y NORD and the US FDA, the IPPF Natural History…
Natural History Study
Sponsored by NORD and the US FDA, the IPPF Natural History Study collects patient data for analysis in research studies.The more data we can collect, the better the information we can give to researchers. This leads to better treatments, earlier diagnosis, and one day – A CURE!
White Paper
Elevating Awareness of the Pressing Needs of the Pemphigus Community
Scientific Symposia
The IPPF hosts periodic international symposia to bring together pemphigus and pemphigoid patients, clinicians, researchers, and industry partners to focus on ongoing or future clinical trials and their underlying science.
Advocacy and Awareness
Advocacy
The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.
Learn more about advocacyAwareness
Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.
Biopsies Save LivesTell us your story!
Upcoming Events
2021 International Scientific Symposium
IPPF Scientific Meeting and Satellite Symposium to the 50th Annual Meeting of the European Society for Dermatological Research (ESDR)…
PemPress
Thursday, March 25, 2021
Statement Regarding Anti-Asian Racism and Healthcare Inequities
March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare…
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Wednesday, March 10, 2021
Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Vaccination Information Related to Autoimmune Bullous Diseases The information in this vaccination section originated from recommendations made by the…
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Friday, October 30, 2020
Hannah Yale: Empowerment through Community
Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I…
Read moreSupport our critical patient services, research, advocacy, and awareness efforts today
Ways to Give
