The IPPF offers Patient Education Series Webinars featuring leading pemphigus and pemphigoid physicians and scientists. These free webinars are a friendly and casual environment to learn more about specific disease topics.
Note: Information is a key factor in treating and living with any condition. However, every patient’s situation is unique. The IPPF reminds you that any information found on the internet or during presentations should be discussed with your own doctor or healthcare team to determine if it applies to your specific situation.
Upcoming Webinars
IVIg Treatment
May 9, 2024
Oral Disease, Treatment, and Care for Pemphigus and Pemphigoid
May 21, 2024
Format
Patient Education Webinars follow a Town Hall format. The invited speaker may or may not present information before opening up the “floor” for questions.
Webinars are offered at no cost to attendees. Questions related to the specific webinar topic can be submitted prior to the webinar to becky@pemphigus.org. (Please note: questions will be screened for relevance.) When you connect to the conference you will be placed on MUTE. You will either hear HOLD music or one of the IPPF team talking and providing additional instructions.
Calls are not toll-free; however, you can participate using your computer’s microphone and speakers, tablet (iPad), smart phone, or standard telephone.
The IPPF uses GoToWebinar for our Patient Education Webinars. If you need assistance, email becky@pemphigus.org.
Archive: Past Patient Education Webinars
January 25: An Introduction to Pemphigoid: A Disease Overview (Dr. Brittney Schultz) | Transcription
February 5: An Introduction to Pemphigus: A Disease Overview (Dr. Kyle Amber) | Transcription
February 13: Mental Health When You Have a Skin Disease (Dr. Steven Daveluy) | Transcription
February 21: Narrating Your Story: Self-Advocacy (Carly Flumer)
February 26: Tips and Tricks for Living with Pemphigus and Pemphigoid with the IPPF Peer Coaches
March 19: Eye Disease and Treatment for Pemphigus and Pemphigoid (Dr. Ali Djulilian)
April 8: Skin Care for Pemphigus and Pemphigoid (Dr. Benedict Wu)
February 8: Fundamentals of Pemphigoid (Dr. Janet Fairley) | Transcription
February 16: Fundamentals of Pemphigus (Dr. Brittney Schultz) | Transcription
March 28: Regeneron LIBERTY-BP Study (Dr. Arsalan Shabbir)
April 6: Prednisone and Corticosteroid Treatment (Dr. Annette Czernik) | Transcription
April 19: Rituximab Treatment (Dr. Donna Culton) | Transcription
May 3: Anti-Inflammatory Medications (Dr. David Fivenson) | Transcription
June 7: IVIg Treatment (Dr. Kyle Amber) | Transcription
July 17: Skincare and Pemphigus and Pemphigoid (Dr. Heather Holahan) | Transcription
August 3: Supplements in Autoimmune Disease and Vaccinations (Dr. Victoria Werth) | Transcription
November 9: Immunosuppressives (Dr. Benny Wu) | Transcription
December 4: Skincare for People of Color (Dr. Prince Adotama) | Transcription
January 18: Rare Disease Week 2022 | Transcription
January 31: Dermatology and Dentistry Ask the Experts | Transcription
February 9: An Overview of the AstraZeneca FJORD Trial for Bullous Pemphigoid | Transcription
February 15: Research in the Real World: COVID-19 and Pemphigus and Pemphigoid | Transcription
April 12: Oral Systemic Medicines for Pemphigus and Pemphigoid | Transcription
May 19: Skin Care and Topical Treatments for Pemphigus and Pemphigoid | Transcription
May 31: PTSD and Pemphigus and Pemphigoid | Transcription
June 7: Nutrition and Pemphigus and Pemphigoid | Transcription
June 27: Oral Care and Health | Transcription
July 20: Eye Care for Pemphigus and Pemphigoid | Transcription
August 16: Pemphigus and Pemphigoid Disease Overview | Transcription
August 22: Deep Dive: Diagnostics of Pemphigus and Pemphigoid | Transcription
November 15: BALLAD Bullous Pemphigoid Clinical Trial Information (Sponsored by argenx) | Transcription
December 14: How to Participate in the EL-PFDD Meeting (passcode y$c7#KU@)
January 15: Advocacy and Rare Across America | Transcription
February 10: Peer Support with IPPF Peer Health Coaches | Transcription
February 24: Back to Basics Treatment Series: Prednisone and Corticosteroids (Dr. Donna Culton) | Presentation Slides | Transcription
March 3: Back to Basics Treatment Series: IVIg (Dr. Kyle Amber) | Presentation Slides | Transcription
March 9: Back to Basics Treatment Series: Immunosuppressants (Dr. Animesh Sinha) Transcription
March 16: Back to Basics Treatment Series: Rituximab (Dr. Victoria Werth) | Transcription
March 23: Back to Basics Treatment Series: Anti-inflammatories (Dr. David Fivenson) | Transcription
April 20: Back to Basics: All About Pemphigus (Dr. Neil Korman) | Transcription
May 10: Back to Basics: All About Pemphigoid (Dr. Ron Feldman) | Transcription
May 18: Pemphigus Phase III ADDRESS Study (John Holtz and Katherine Perez) | Transcription
June 2: COVID-19 Updates and Vaccines (IPPF Medical Advisory Council Members) | Transcription
June 9: Rare Disease Week Advocacy
August 10: The DesCAARTES Study: DSG3-CAART for Mucosal Pemphigus Vulgaris
September 15: COVID-19 Updates and Vaccines (IPPF Medical Advisory Council Members) | Transcription
December 10: P/P Oral Health and Care (Tanya Gibson, DDS and Rashidah Wiley, DDS) | Transcription
February 3: Clinical Trials General Q&A (Dr. Annette Czernik | (Transcription)
February 18: Pemphigus and Pemphigoid Treatments and Side Effects (Dr. David Fivenson) | (Transcription)
March 3: Pemphigus and Pemphigoid Treatments and Side Effects (Dr. Janet Fairley) | (Transcription)
April 2: Mental Health and Wellness (Lynne Mitchell, RSW) | (Transcription)
April 9: COVID-19 and Pemphigus and Pemphigoid (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | (Presentation Slides) | (Transcription)
April 15: Pemphigus and Pemphigoid Symptoms (Dr. Ron Feldman) | (Transcription)
April 23: COVID-19 and Pemphigus and Pemphigoid Part II (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | (Presentation Slides) | (Transcription)
April 30: Oral Health and Pemphigus and Pemphigoid (Dr. Tanya Gibson and Dr. Nasser Said-Al-Naief)) | (Transcription)
May 7: Less Stress, More Laughter (Barbara Hee) | (Transcription)
May 13: Clinical Trials Q&A (Dr. Donna Culton) | (Transcription)
May 21: IVIg Treatment (Michelle Greer) | (Transcription)
May 27: Peer Support with the IPPF Peer Health Coaches | (Transcription)
June 3: Pemphigus and Pemphigoid 101 (Dr. Animesh Sinha) | (Transcription)
June 11: COVID-19 and Pemphigus and Pemphigoid Part Follow-up (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | Transcription
June 18: Q&A Pemphigus and Pemphigoid Treatments (Dr. Neil Korman) | (Transcription)
June 22: The Effect of COVID-19 on Oral Health and Care (Dr. Ricardo Padilla and Jennifer Harmon, RDH) | (Transcription)
July 16: A Multidisciplinary Approach to P/P Treatment and Care (Dr. Donna Culton and Dr. Joel Laudenbach) | (Transcription)
September 1: Peer Support with the IPPF Peer Health Coaches. | (Transcription)
October 26: Peer Support with the IPPF Peer Health Coaches | (Transcription)
December 9: COVID-19 Update with IPPF Medical Advisory Council Members | Presentation Slides | (Transcription)
December 16: Mental Health and Stress Management (Lynne Mitchell) | (Transcription)
February: IVIG in Pemphigus and Pemphigoid (Dr. Razzaque Ahmed) | (Transcription)
March: Oral Health in Pemphigus and Pemphigoid (Jennifer Harmon) | (Transcription)
April: Immunosuppressives in Pemphigus and Pemphigoid (Dr. Neil Korman) | (Transcription)
May: Rituximab and Genentech Access Solutions (Dr. Margaret Michalska) | (Presentation Slides) | (Transcription)
June: Treatment of Oral Pemphigus and Pemphigoid (Dr. Joel Laudenbach) | (Transcription)
July: Peer to Peer Support (IPPF Peer Health Coaches) | (Transcription)
August 1: Pemphigus and Pemphigoid Treatment Q&A (Dr. Kyle Amber) | (Transcription)
August 28: General P/P Q&A (Dr. Donna Culton) | (Transcription)
February: Mental Health with Pemphigus and Pemphigoid (Janet Segall and Ivana Mitchell) | (Transcription)
March: Research and Advocacy (Dr. Donna Culton and Marc Yale | Transcription
April: IPPF Awareness Program Update (Kate Frantz and Bryon Scott) | Presentation Slides
June: Rituximab as a Treatment Option for Pemphigus and Pemphigoid Patients (Dr. Victoria Werth) Presentation Slides | (Transcription)
July: Treatment Q&A (Dr. M. Peter Marinkovich | (Transcription)
August: Prednisone and its Side Effects (Dr. Ron Feldman) | (Transcription)
November: IPPF Peer Health Coaches Q &A Session | (Transcription)
February: Clinical Studies and Patient Participation (Dr. Victoria Werth)
March: Patient to Patient: Peer Health Coaches
April: Chronic Illness and Mental Health
May: Dental Implants and Oral Surgery in Patients with Pemphigus and Pemphigoid
June: Women’s Health Issues with Pemphigus and Pemphigoid (Dr. Vanessa Holland)
July: Natural History Study, the IPPF, and You! | (Presentation Slides)
October: Insurance Issues with Pemphigus and Pemphigoid- Viki Figge, Kroger Specialty Infusion | (Presentation Slides)
November: The Immune System (Dr. Razzaque Ahmed) | (Transcription)
March: Treatments & Preventing Side Effects (Dr. Victoria Werth)
April: Steroid-Sparing Treatments (Dr. David Fivenson)
May: Oral Pemphigus & Pemphigoid (Dr. Paul Edwards)
June: Pemphigus & Pemphigoid Q&A (Dr. Peter Marinkovich)
July: Intravenous Immunoglobulin {IVIG} (Dr. Razzaque Ahmed)
August: Patient to Patient Q&A (Janet Segall and Marc Yale)
October: Now You’re Starting IVIG – What Now? (Vicki Starr, MedPro RX – A Diplomat Company)
March: Causes & Genetics of Pemphigus & Pemphigoid (Dr. Animesh Sinha) | (Transcription)
April: Caregivers ( Sheila Warnock of Share the Care)
May: Patient to Patient Support (Marc Yale, Esther Nelson, Rudy Soto, Rebecca Van Hout, and Hannah Heinzig) | (Transcription)
June: Pemphigus & Pemphigoid in Women (Dr. Vanessa Holland) | (Transcription)
July: One Patient’s Journey (Molly LaFata)
August: Patient to Patient Support (Janet Segall and Marc Yale) | (Transcription)
November: The Effects of Steroids (Dr. Yousaf Ali) – AUDIO ONLY
December: Rituximab in Pemphigus and Pemphigoid: Successes, Failures, and Next-Generation Therapies (Dr. Aimee Payne)
May: Patient to Patient Support (Mei Ling Moore, Rebecca Oling, Janet Segall, Rebecca Strong, and Marc Yale) | (Transcription)
June: Rituximab [Rituxan/MabThera] (Dr. Grant Anhalt) | (Transcription)
July: P/P General Q & A (Dr. Neil Korman) | (Transcription)
August: Oral P/P (Dr. Terry Rees)
September: IVIG (Dr. Sergei Grando | (Transcription)
October: Patient to Patient Support (Janet Segall and Marc Yale | (Transcription)
November: Dealing with Mental Health While Combating a Rare Disease (Susan Cohen Byrne, M.A.) | (Transcription)