A cross-sectional study of the International Pemphigus and Pemphigoid Foundation
April 5, 2021
This past summer and early fall, we asked our patient community to participate in a survey regarding the effects that the ongoing COVID-19 pandemic have had on their lives. We’re happy to report that the results of that survey led to a publication in the Journal of The European Academy of Dermatology and Venereology this month: “COVID-19 Pandemic and Autoimmune Bullous Diseases: a Cross-Sectional Study of the International Pemphigus and Pemphigoid Foundation”.
We are especially grateful to the 372 pemphigus and pemphigoid patients who completed our USC / IPPF COVID-19 Impact Survey.
The objective of this study as outlined in the article was “to investigate the associations of outdoor activity restriction, income loss and treatment non-adherence with self-reported outcomes and to determine the satisfaction level with teledermatology platforms in patients with autoimmune bullous diseases (AIBDs) during the COVID-19 pandemic.” Access the article, including the study data and conclusions, here.