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Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our directory and filter by specialty.

Find a doctor

Ask a coach

Peer Coaches offer the opportunity to communicate with specific members of the IPPF community who have pemphigus and pemphigoid. Peer Coaches are volunteers who have learned how to manage their diseases. They are willing to share their personal tips and tricks, as well as IPPF resources and educational materials that help people affected by pemphigus and pemphigoid to have meaningful discussions with their healthcare teams.

Ask a coach

P/P Research

Natural History Study
Natural History Study

Sponsored by NORD and the US FDA, the IPPF Natural History Study collects patient data for analysis in research studies.The more data we can collect, the better the information we can share with researchers. This leads to better treatments, earlier diagnosis, and poentially – A CURE!
EL-PFDD
Externally-Led Patient Focused Drug Development Meeting on P/P

This meeting brought together patients and care partners, FDA representatives, pharmaceutical companies, doctors, and researchers.
Clinical Trials
Clinical Trials

Find out about current clinical trials related to P/P and how to determine if they’re right for you.
Publications
White Paper

Elevating Awareness of the Pressing Needs of the Pemphigus Community
IPPF Research

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Halima Image
My symptoms started at the beginning of April 2018. My mouth was inflamed, and I had painful blisters on both sides that made it very difficult to eat or drink. I had no idea what was causing my symptoms, and… read more
Halima Patient
Rudy Image
My journey with pemphigus foliaceus (PF) began in 2009; however, my symptoms began in 2008. I have been in remission since 2016. It has been a long journey, and I have encountered many bumps and detours along the way. I… read more
Rudy Patient
Mei Ling Image
I’ve been a peer health coach (PHC) with the IPPF since 2012. However, if you had told me back in early 2001 that this is what I would be doing today, I never would have believed you. I had never… read more
Mei Ling Patient
Minatallah Image
When applying to dental school, my initial feelings about dentistry centered on a yearning to help others. Our prerequisite courses required us to be involved within the community and provide for those in need of dental care. This helped open… read more
Minatallah Patient
Linda Image
My journey began in August, 2017. I had a slight rash on my lower back that was extremely itchy. When I went to see my primary care doctor for my annual physical, I mentioned the rash, but he never looked… read more
Linda Patient
Kathleena Image
When I was first diagnosed with pemphigus vulgaris (PV), I didn’t have the slightest clue what those strange words meant or how this disease would impact my life. The physician who finally diagnosed me handed me a description of the… read more
Kathleena Patient
Fred Image
It was January 2007, and I was sitting across the desk from the second dermatologist I had seen in five months. For the second time, I was told that my condition was probably “seborrheic something-or-other” and was prescribed an alcohol-based… read more
Fred Patient
Toby Image
When I was diagnosed with pemphigus vulgaris (PV) in late 2010, like most patients I’d never heard of the disease. Also, like most, I’d endured about six months of worsening symptoms before finding a doctor who was able to help… read more
Toby Patient
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    Upcoming Events

    South Florida Virtual Support Group Image
    Sunday, January 11, 2026 2:00pm (PST)
    South Florida Virtual Support Group
    Topic: January 11 South Florida Virtual Support Group Meeting

    This is a virtual meeting and Zoom information will be sent upon registration.

    Read More
    Pacific Northwest Virtual Support Group Meeting Image
    Monday, January 12, 2026 6:00pm (PST)
    Pacific Northwest Virtual Support Group Meeting
    Topic: January 12 Pacific Northwest Support Group Meeting

    This is a virtual meeting and the Zoom link and phone numbers for calling in will be sent upon…

    Read More
    See all upcoming events

    PemPress

    Your Relationships Matter: Let’s Talk About Intimacy Image

    Tuesday, December 16, 2025

    Your Relationships Matter: Let’s Talk About Intimacy
    Posted by Rebecca Strong

    Living with pemphigus and pemphigoid comes with many challenges – some visible, and others deeply personal.

    Read more
    When You’re the Caregiver and a Patient Image

    Tuesday, November 18, 2025

    When You’re the Caregiver and a Patient
    Posted by Rebecca Strong

    When both caring for someone and being the person receiving care, effective communication and a clear understanding of roles…

    Read more
    Managing Work When You’re Managing a Disease Image

    Tuesday, October 14, 2025

    Managing Work When You’re Managing a Disease
    Posted by Rebecca Strong

    Whether you’re working full-time, part-time, or from home, pemphigus or pemphigoid can make staying productive difficult.

    Read more
    Rest is Healing: Tips for Better Sleep Image

    Tuesday, September 16, 2025

    Rest is Healing: Tips for Better Sleep
    Posted by Rebecca Strong

    Disrupted sleep is common with chronic illness, especially with pemphigus and pemphigoid.

    Read more
    Meet Ramesh Swamy, New IPPF Board Chair Image

    Sunday, August 24, 2025

    Meet Ramesh Swamy, New IPPF Board Chair
    Posted by Anna Lane

    This spotlight was recently featured in the American South Asian Network (ASAN). When the IPPF named Ramesh Swamy its…

    Read more
    Finding Foods that Work for You When You Have Oral Lesions Image

    Monday, August 18, 2025

    Finding Foods that Work for You When You Have Oral Lesions
    Posted by Rebecca Strong

    Every bite matters in your healing journey.

    Read more
    Soothing the Skin You’re In: Practical Care for Pemphigus and Pemphigoid Image

    Friday, July 18, 2025

    Soothing the Skin You’re In: Practical Care for Pemphigus and Pemphigoid
    Posted by Rebecca Strong

    Living with pemphigus or pemphigoid means getting to know your body in a new way.

    Read more
    Dupixent Approved for Bullous Pemphigoid Image

    Friday, June 20, 2025

    Dupixent Approved for Bullous Pemphigoid
    Posted by Patrick Dunn

    A Message from our Executive Director Dear IPPF Community, Today, I’m incredibly grateful to share the exciting news that…

    Read more
    Knowledge is Power: Understanding Pemphigus and Pemphigoid Image

    Tuesday, April 29, 2025

    Knowledge is Power: Understanding Pemphigus and Pemphigoid
    Posted by Rebecca Strong

    April 28, 2025 Navigating life with pemphigus or pemphigoid (P/P) can be a challenging journey, filled with uncertainty and…

    Read more
    Dupixent Meets Endpoints in Phase 2/3 Bullous Pemphigoid Study Image

    Wednesday, September 11, 2024

    Dupixent Meets Endpoints in Phase 2/3 Bullous Pemphigoid Study
    Posted by Patrick Dunn

    Dupixent is the first and only biologic to achieve significant improvements in disease remission and symptoms in bullous pemphigoid…

    Read more
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