The IPPF offers Patient Education Series Webinars featuring leading pemphigus and pemphigoid physicians and scientists. These free webinars are a friendly and casual environment to learn more about specific disease topics.
Upcoming Webinars
TBA
This program is sponsored in part by Genentech, Principia Biopharma, argenx, and Cabaletta Bio.
Format
Patient Education Webinars follow a Town Hall format. The invited speaker may or may not present information before opening up the “floor” for questions. Attendees will “raise their hand” to ask questions.
Webinars are offered at no cost to attendees. Questions can be submitted prior to the webinar to becky@pemphigus.org and will be answered in the order they are received. When you connect to the conference you will be placed on MUTE. You will either hear HOLD music or one of the IPPF team talking and providing additional instructions.
Calls are not toll-free; however, you can participate using your computer’s microphone and speakers, tablet (iPad), smart phone, or standard telephone.
The IPPF uses GoToWebinar for our Patient Education Webinars. If you need assistance, email becky@pemphigus.org.
Archive: Past Patient Education Webinars
February 3: Clinical Trials General Q&A (Dr. Annette Czernik | (Transcription)
February 18: Pemphigus and Pemphigoid Treatments and Side Effects (Dr. David Fivenson) | (Transcription)
March 3: Pemphigus and Pemphigoid Treatments and Side Effects (Dr. Janet Fairley) | (Transcription)
April 2: Mental Health and Wellness (Lynne Mitchell, RSW) | (Transcription)
April 9: COVID-19 and Pemphigus and Pemphigoid (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | (Presentation Slides) | (Transcription)
April 15: Pemphigus and Pemphigoid Symptoms (Dr. Ron Feldman) | (Transcription)
April 23: COVID-19 and Pemphigus and Pemphigoid Part II (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | (Presentation Slides) | (Transcription)
April 30: Oral Health and Pemphigus and Pemphigoid (Dr. Tanya Gibson and Dr. Nasser Said-Al-Naief)) | (Transcription)
May 7: Less Stress, More Laughter (Barbara Hee) | (Transcription)
May 13: Clinical Trials Q&A (Dr. Donna Culton) | (Transcription)
May 21: IVIg Treatment (Michelle Greer) | (Transcription)
May 27: Peer Support with the IPPF Peer Health Coaches | (Transcription)
June 3: Pemphigus and Pemphigoid 101 (Dr. Animesh Sinha) | (Transcription)
June 11: COVID-19 and Pemphigus and Pemphigoid Part Follow-up (IPPF Medical Advisory Council- Dr. Aimee Payne, Dr. Mary Tomayko, and Dr. Emanual Maverakis) | Transcription
June 18: Q&A Pemphigus and Pemphigoid Treatments (Dr. Neil Korman) | (Transcription)
June 22: The Effect of COVID-19 on Oral Health and Care (Dr. Ricardo Padilla and Jennifer Harmon, RDH) | (Transcription)
July 16: A Multidisciplinary Approach to P/P Treatment and Care (Dr. Donna Culton and Dr. Joel Laudenbach) | (Transcription)
September 1: Peer Support with the IPPF Peer Health Coaches. |
February: IVIG in Pemphigus and Pemphigoid (Dr. Razzaque Ahmed) | (Transcription)
March: Oral Health in Pemphigus and Pemphigoid (Jennifer Harmon) | (Transcription)
April: Immunosuppressives in Pemphigus and Pemphigoid (Dr. Neil Korman) | (Transcription)
May: Rituximab and Genentech Access Solutions (Dr. Margaret Michalska) | (Presentation Slides) | (Transcription)
June: Treatment of Oral Pemphigus and Pemphigoid (Dr. Joel Laudenbach) | (Transcription)
July: Peer to Peer Support (IPPF Peer Health Coaches) | (Transcription)
August 1: Pemphigus and Pemphigoid Treatment Q&A (Dr. Kyle Amber) | (Transcription)
August 28: General P/P Q&A (Dr. Donna Culton) | (Transcription)
February: Mental Health with Pemphigus and Pemphigoid (Janet Segall and Ivana Mitchell) | (Transcription)
March: Research and Advocacy (Dr. Donna Culton and Marc Yale) Transcription
April: IPPF Awareness Program Update (Kate Frantz and Bryon Scott) | Presentation Slides
June: Rituximab as a Treatment Option for Pemphigus and Pemphigoid Patients (Dr. Victoria Werth) Presentation Slides | (Transcription)
July: Treatment Q&A (Dr. M. Peter Marinkovich | (Transcription)
August: Prednisone and its Side Effects (Dr. Ron Feldman) | (Transcription)
November: IPPF Peer Health Coaches Q &A Session | (Transcription)
February: Clinical Studies and Patient Participation (Dr. Victoria Werth)
March: Patient to Patient: Peer Health Coaches
April: Chronic Illness and Mental Health
May: Dental Implants and Oral Surgery in Patients with Pemphigus and Pemphigoid
June: Women’s Health Issues with Pemphigus and Pemphigoid (Dr. Vanessa Holland)
July: Natural History Study, the IPPF, and You! | (Presentation Slides)
November: The Immune System (Dr. Razzaque Ahmed) | (Transcription)
March: Treatments & Preventing Side Effects (Dr. Victoria Werth)
April: Steroid-Sparing Treatments (Dr. David Fivenson)
May: Oral Pemphigus & Pemphigoid (Dr. Paul Edwards)
June: Pemphigus & Pemphigoid Q&A (Dr. Peter Marinkovich)
July: Intravenous Immunoglobulin {IVIG} (Dr. Razzaque Ahmed)
August: Patient to Patient Q&A (Janet Segall and Marc Yale)
October: Now You’re Starting IVIG – What Now? (Vicki Starr, MedPro RX – A Diplomat Company)
March: Causes & Genetics of Pemphigus & Pemphigoid (Dr. Animesh Sinha) | (Transcription)
April: Caregivers ( Sheila Warnock of Share the Care)
May: Patient to Patient Support (Marc Yale, Esther Nelson, Rudy Soto, Rebecca Van Hout, and Hannah Heinzig) | (Transcription)
June: Pemphigus & Pemphigoid in Women (Dr. Vanessa Holland) | (Transcription)
July: One Patient’s Journey (Molly LaFata)
August: Patient to Patient Support (Janet Segall and Marc Yale) | (Transcription)
November: The Effects of Steroids (Dr. Yousaf Ali) – AUDIO ONLY
December: Rituximab in Pemphigus and Pemphigoid: Successes, Failures, and Next-Generation Therapies (Dr. Aimee Payne)
May: Patient to Patient Support (Mei Ling Moore, Rebecca Oling, Janet Segall, Rebecca Strong, and Marc Yale) | (Transcription)
June: Rituximab [Rituxan/MabThera] (Dr. Grant Anhalt) | (Transcription)
July: P/P General Q & A (Dr. Neil Korman) | (Transcription)
August: Oral P/P (Dr. Terry Rees)
September: IVIG (Dr. Sergei Grando | (Transcription)
October: Patient to Patient Support (Janet Segall and Marc Yale | (Transcription)
November: Dealing with Mental Health While Combating a Rare Disease (Susan Cohen Byrne, M.A.) | (Transcription)
