Support Groups

Support comes from all over. Often times, it is closer than you think. Here is our listing of groups, associations, and organizations that support pemphigus and pemphigoid patients and caregivers. If you have a group you would like listed here, please contact us.

Note: Information is a key factor in treating and living with any condition. However, every patient’s situation is unique. The IPPF reminds you that any information found on the internet or during presentations should be discussed with your own doctor or healthcare team to determine if it applies to your specific situation.

U.S. Support Groups

  • Boston, MA
  • Chicago, IL
  • Florida
  • Houston, TX  
  • Mid-Atlantic/DC
  • Northern CA
  • Pacific Northwest
  • Southern CA
  • Tri-State/New York Area

Find upcoming meetings on our Events page.

For more information contact or call 916-922-1298

International Organizations & Associations


Australasian Blistering Diseases Foundation


Association Pemphigus & Pemphigoide France 


Pemphigus und Pemphigoid Selbsthilfegruppe e.V.


Pemphigus/Pemphigoid Friends Association

The Netherlands

Netwerk Nederland Pemphigus en Pemfigoid 


Associazione Nazionale Pemfigo Pemfigoide Italy  

SOS Team Pemphigo- Pemfigoide

United Kingdom

PEM Friends

Online Discussion Forum

RareConnect is a safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world’s leading rare disease patient groups to offer global online communities allowing people to connect around issues that affect them while living with a rare disease.