Support comes from all over. Often times, it is closer than you think. Here is our listing of groups, associations, and organizations that support pemphigus and pemphigoid patients and caregivers. If you have a group you would like listed here, please contact us.
Note: Information is a key factor in treating and living with any condition. However, every patient’s situation is unique. The IPPF reminds you that any information found on the internet or during presentations should be discussed with your own doctor or healthcare team to determine if it applies to your specific situation.
U.S. Support Groups
- Austin, TX
- Boston, MA
- Chicago, IL
- Florida
- Houston, TX
- Mid-Atlantic/DC
- Northern CA
- Pacific Northwest
- Rocky Mountain/CO
- Southern CA
- Tri-State/New York Area
Find upcoming meetings on our Events page.
For more information contact info@pemphigus.org or call 916-922-1298
International Organizations & Associations
Australia
Australasian Blistering Diseases Foundation
France
Association Pemphigus & Pemphigoide France
Germany
Pemphigus und Pemphigoid Selbsthilfegruppe e.V.
Japan
Pemphigus/Pemphigoid Friends Association
The Netherlands
Netwerk Nederland Pemphigus en Pemfigoid
Italy
Associazione Nazionale Pemfigo Pemfigoide Italy
United Kingdom
Online Discussion Forum
RareConnect is a safe, easy to use platform where rare disease patients, families and patient organizations can develop online communities and conversations across continents and languages. RareConnect partners with the world’s leading rare disease patient groups to offer global online communities allowing people to connect around issues that affect them while living with a rare disease.