by Svoboda M. Holt, M.S. LMHC, NCC "I Have What!" It all started with a simple flake on the back of my head. I remember it well. I was sitting on my couch when I reached up and came away…
by Kirsten R Bellur It is almost four years ago that, after many failed attempts, I was finally accurately diagnosed with Pemphigus. In the face of that solemn pronouncement, I was told there was good news: it was only Foliaceous,…
By Rebecca Berman, Janet Segall and Jean-Claude Bystryn, M.D. from The National Pemphigus Foundation and The Ronald O. Perelman Department of Dermatology, New York University School of Medicine, New York, NY. February 17, 1999 As many of you know, we…
In a world of paper records, consumers have long been vulnerable to someone’s snooping around an unattended file drawer. Such thefts were rare but could be pulled off without detection.
Following up Merck’s doctor-payment disclosures, Pfizer and GlaxoSmithKline posted their numbers. And perhaps befitting to the world’s largest drugmaker, Pfizer spent the most: $177 million was doled out to doctors in support for clinical trials and speaking fees. GSK’s payments…
Finding health information can be hard if you have a rare disease. Those patients often have to become experts themselves. Social media like Facebook make it easier for people with rare disorders to find each other and share that expertise.…
David Muhwezi, the 14-year-old boy whose body is covered in wounds, has been diagnosed with a rare skin disease, Pemphigus. According to the International Pemphigus and Pemphigoid Foundation (FIPF), Pemphigus is an autoimmune disease that affects the skin and mucous…
Methotrexate is often used to control pemphigus and MedlinePlus lists some warnings you should be aware of. ALWAYS discuss your care with your physician before making any changes to your treatment.Methotrexate may cause very serious side effects. Some side effects…
In particular, scientists are studying the causes of these diseases, the genetic factors that make people susceptible to them, and the regulatory mechanisms that control autoantibody production. read at: http://www.niaid.nih.gov/topics/autoimmune/Pages/default.aspx
The Coalition of Skin Diseases (CSD) consists of several organizations that represent patients suffering from some of the 3,000 known types of skin disease. The groups share a common mission of educating patients, advocacy and supporting skin disease research that…
