Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I felt very alone and isolated when I found out I had pemphigus vulgaris. Then I found community in the IPPF. It was very comforting to know there were others out there who had gone through what I was living through. Now imagine being with hundreds of others who have a variety of rare diseases.
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If you live in the Southern New Jersey/Philadelphia area, register today to attend the first support group meeting… twitter.com/i/web/status/1…
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We earned a Platinum Seal of Transparency by sharing the metrics that matter most! Check out our updated… twitter.com/i/web/status/1…
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The IPPF recently presented at @WesternUNews to students in the College of Dental Medicine and College of Optometry… twitter.com/i/web/status/1…
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There's still time to register for the upcoming Austin support group meeting on December 14th. Register today!… twitter.com/i/web/status/1…
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Thank you to everyone that stopped by our booth at the @GNYDM and learned about the IPPF’s #BiopsiesSaveLives campa… twitter.com/i/web/status/1…