Our Mission
To improve the quality of life for all people affected by pemphigus and pemphigoid through support, education, awareness, advocacy, and research.
Our Vision
To find a cure for pemphigus and pemphigoid.
IPPF Overview
The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid, and to provide patients and their caregivers much needed comfort and support so they can continue to live active, productive lives. To help fulfill those objectives, we:
- Offer a “find a doctor” tool to help patients locate knowledgeable medical professionals;
- Provide a number of valuable and popular patient support services;
- Publish current disease information, as well as a quarterly journal with news, useful information, medical updates, personal stories, and more;
- Host an annual Patient Education Conference;
- Collaborate with pharmaceutical companies and other industry partners on the leading edge of disease treatment;
- Provide information about current clinical trials and disease research;
- Maintain relationships with Congressional representatives and others who may be able to encourage or research funding.
To ensure that we are able to provide the most current information about the disease and treatments, we have developed and continue to maintain close relationships with doctors and leaders in the medical community, including the National Institutes of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health, and the American Academy of Dermatology (AAD). The IPPF is also an active member of a number of other organizations that help us fulfill our role as patient advocates and enable us to have more impact as we work together: National Organization of Rare Disorders (NORD), the Coalition of Skin Diseases (CSD), Derma Care Access Network (DCAN) and the International Alliance of Dermatological Patient Organizations (IADPO).
Other Support Sites and Affiliates
