Happy Holidays!

Great 2015 Gives Way to an Exciting 2016

As the holidays approach and 2015 draws to a close, there is much to reflect upon — and even more for which to be grateful. Join us in celebrating our many accomplishments, great and small, made throughout the P/P community this year such as:

NORD Leadership Award

The IPPF was recognized with the National Organization for Rare Disorders’ Abbey S. Meyers Leadership Award. This award, established in honor of NORD’s founding president, honors NORD Member Organizations for strong and effective leadership on behalf of its members.

Dental Student Education

Our Awareness Campaign’s Patient Educators presented to over 1,000 dental students! Approximately 70% of PV patients have oral involvement. By educating the next generation of dentists, the IPPF hopes to reduce the time to be properly diagnosed and begin treatment.

Local Support Groups

We added more local support groups to connect patients and caregiver with others who know, care, and understand. Boston, Los Angeles, South Florida, Houston, and New York are very active groups. Ask us about starting one in your area!

And yet with these distinctions, we do not rest on our own achievements, continually raising our own bar to fulfill our mission. As we strive to provide remarkable support and education experiences, we have also embarked on very challenging and significant initiatives to improve your quality of life. These are just some highlights of a very dynamic time at the IPPF and you see the results of this in everything we do – from answering your call or email, to planning events, lectures, and conferences. To help us continue growing programs and extending our reach, I encourage you to support the IPPF.

75|$100K Challenge

Challenge your friends and family during our Holiday Fundraiser and $100K Challenge Grant. Each person who makes a donation will receive a pair of our #healourskin sunglasses and all “new money” is eligible for matching by a generous community member. No matter what your P/P role is (patient, caregiver, physician, friend), we are all ultimately united through a common hope, an uncommon bond. Thank you for all you do in the P/P community!

From all of us here at the IPPF to our entire pem-family, we wish you a safe and happy holiday season.

2016 Projects

  • Post the entire Quarterly archive on our website
  • Develop a patient and physician education portal
  • Expand our patient and physician downloadable resources
  • Create educational videos from P/P experts
  • Host our Patient Conference in Austin, TX, Sept 2-24, 2016
  • Continue to advocate at the state and national level
  • Improve our Patient Support offerings
  • Offer more Patient Education Calls
  • and much, much more!


Give Before December 3