Healing Hero Spotlight: Toby

Healing Heroes are the heart of our community. They go above and beyond to support the IPPF community by making sustaining, monthly gifts to support our mission of improving the quality of life for all those affected by pemphigus and pemphigoid. Join Toby and become a Healing Hero today.


Do you remember being diagnosed?

That feeling of being alone with a rare disease?

Most newly diagnosed patients have never met another
person with pemphigus or pemphigoid (P/P).

That’s where IPPF Peer Coaches come in. 

An IPPF Peer Coach is often the first person a patient connects with who “gets it.” Here’s your chance to make sure that the Peer Coach program can continue.

monthly gift of $30 or more allows IPPF Peer Coaches to support 75 members of our community by providing them with resources, tips, and tricks on how to live and thrive with P/P. They help patients know that they’re not alone. 

Introducing Toby, a pemphigus patient . . . 

Toby became a Healing Hero determined to pay it forward so other patients don’t have to feel alone. Don’t miss her compelling story.

Make a contribution like Toby did . . . 

Give what you can now

“I could not have gone it alone, and I want others to experience the same comfort and support I received. Help me pay it forward and fund the future by becoming a Healing Hero.”

Monthly Sustaining Gift Options

IMPROVE PATIENT ACCESS TO CARE ($15)
Your monthly gift of $15 allows us to screen and add a new medical professional to our Find a Doctor map, increasing patients’ access to care.

HELP THE NEWLY DIAGNOSED ($30)
Your monthly gift of $30 allows our Peer Coaches to support 75 members of our community by providing them with resources, tips, and tricks on how to live and thrive with pemphigus and pemphigoid.

ACCELERATE DIAGNOSIS TIMES ($75)
Your monthly gift of $75 raises disease awareness by educating 75 medical professionals through our Biopsies Save Lives campaign. 

FUND ESSENTIAL RESEARCH ($100)
Your monthly gift of $100 helps us conduct the ongoing Natural History Study to better understand pemphigus and pemphigoid.

Become a Healing Hero

By becoming a Healing Hero, you provide for the greater good of our community by sharing our vision:

NO DISEASE IS TOO RARE FOR A CURE!