IPPF’s Marc Yale Named President of GlobalSkin Board of Directors
We’re excited to share that in November of 2021, the IPPF’s Marc Yale was named as President of the Board of Directors of GlobalSkin. Marc is the current IPPF Research and Advocacy Coordinator, and he was the IPPF Executive Director from 2016-2020.
Marc Yale was diagnosed in 2007 with cicatricial pemphigoid. Like others with a rare disease, he experienced delays in diagnosis and difficulty finding a knowledgeable physician.
Eventually, Marc lost the vision in his left eye. This inspired him to help others with the disease. In 2008, he joined the International Pemphigus & Pemphigoid Foundation (IPPF) as a peer health coach.
Since then, Marc has worked with people to improve their quality of life and encourages them to become self-advocates. In 2009, he helped develop the Pemphigus and Pemphigoid Comprehensive Disease Profile giving experts insight into the patient perspective. In 2016, he was asked by the IPPF leadership to become the executive director of the foundation.
Marc currently resides in Ventura, California with his wife Beth and daughter Hannah.
The International Alliance of Dermatology Patient Organizations (IADPO)—also known as GlobalSkin—is a unique global alliance serving patient organizations to improve the lives of dermatology patients worldwide. Based in Canada, the nonprofit is focused on three pillars: research, advocacy, and support.
GlobalSkin envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution or economic disadvantages due to their conditions.
GlobalSkin is working with 185 patient association members—located in 62 countries representing more than 50 disease areas—to improve the lives of those affected by dermatological conditions throughout the world by:
- initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life;
- raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding; and
- supporting members and not-for-profit dermatology patient organizations through education, global campaigning, sharing of best-practices and beneficial networking opportunities to strengthen support for patients and build a strong, inclusive movement;
- building special focus communities; and
- conducting patient-initiated research.
GlobalSkin appeals as one voice to the World Health Organization and other key influencers to recognize the debilitating nature of dermatological disease so that more resources for research and treatment options are made readily available to those afflicted and in need of help.