Unite our Global Community: Lee’s Story

This December, we’re sharing stories from people who have have helped unite our global community so that patients don’t feel as alone. We’ve made great strides in recent years, but there is still much work to be done. Even in times of economic uncertainty, we each have a deep reserve of generosity, and can make a difference.

Janet and the IPPF saved my life during an emergency flare by helping me find a doctor. -Lee Heins

Lee’s Story

I became symptomatic with pemphigus vulgaris October 31, 1994. This was the same month that Janet Segall founded the IPPF. Janet found me as a result of an introduction letter she sent to many Southern California dermatologists, and in particular, a Kaiser dermatologist friend of mine. 

Five months later, I attended the first Los Angeles Support Group Meeting. This was my first introduction to the amazing IPPF community. Five years later, Janet and the IPPF saved my life during an emergency flare by helping me find a doctor at USC Medical Center. My gratitude to the IPPF later led me to join the Board of Directors and serve as the Treasurer.

Please join me in supporting the IPPF. Family and friends may also make a donation in your honor by selecting the “dedication option.”

Our goal at the IPPF is to improve the quality of life for all people affected by pemphigus and pemphigoid. Join us to unite our global community, now through the end of the year. Your tax-deductible donation ensures our patient support programs are available to all those who need them today, tomorrow, and for years to come.

Interested in sustaining your impact by becoming a Healing Hero with a monthly donation instead? Check out our Healing Heroes program here.