Join the IPPF Volunteer Community – Make a Difference Today
Are you passionate about making a real impact in the lives of those affected by pemphigus and pemphigoid? The IPPF is looking for dedicated volunteers to help, support, educate, and advocate for our community. Whether you have a few hours a month or want to take on a larger role, there’s a place for YOU!
Why Volunteer?
- Empower others with pemphigus/pemphigoid and families.
- Connect with an inspiring community.
- Gain valuable experience in advocacy and support.
- Make a life-changing impact for those living with a rare disease.
Impact of Volunteering with the IPPF
Your Time = Life-Changing Impact
By joining the IPPF volunteer team, you become part of a movement of support, advocacy, and education that transforms the lives of those with pemphigus/pemphigoid and families. Every effort – big or small – helps us move closer to a world where no one faces pemphigus or pemphigoid alone.
- Empower Others – Peer Coaches, Mentors, and Support Group Leaders provide hope and educational support to those navigating a difficult diagnosis.
- Advance Early Diagnosis – Community Advocates, Social Media Ambassadors, and Patient Educators help educate medical and dental professionals.
- Strengthen Our Community – Your work brings patients, caregivers, families, and healthcare professionals together, fostering a supportive, informed, and engaged network.
- Fueling Research & Resources – Fundraising Champions help drive donations that fund educational programs, advocacy efforts, and community services, ensuring people get the care and information they need.
- Shaping the Future of Care – Volunteers who advocate for policy changes and participate in awareness efforts help improve treatment access and healthcare options for patients everywhere.
IPPF Volunteer Opportunities
- Peer Coach – Provide 1-on-1 support to newly diagnosed patients, sharing personal experiences and helpful resources to empower them on their journey.
- Community Advocate – Raise awareness by sharing your story, educating others about pemphigus and pemphigoid, and advocating for improved healthcare policies at the local and national level.
- Fundraising Champion – Help organize, promote, and participate in fundraising events, campaigns, and initiatives to support IPPF programs and community services.
- Event Volunteer – Assist at IPPF conferences, patient education meetings, webinars, and support groups with logistics, registration, and community engagement.
- Social Media Ambassador – Use your online presence to spread awareness about pemphigus and pemphigoid, share IPPF resources, and encourage community engagement.
- Blog & Article Writer – Share your voice by writing educational articles, personal stories, and advocacy pieces for the IPPF website and newsletter. Help inform, inspire, and connect our community through the power of storytelling and education.
- Board Member – Oversee the strategic direction, governance, and overall management of the IPPF