Living with pemphigus and pemphigoid comes with many challenges - some visible, and others deeply personal. One area that can be especially difficult to talk about is how our diseases...
Caring for others while managing a rare disease can feel overwhelming. You want to be there for your loved ones, but your energy is limited. When both caring for someone...
Having pemphigus or pemphigoid can be a full-time job. Whether you're working full-time, part-time, or from home, pemphigus or pemphigoid can make staying productive difficult. And doctor appointments, infusions and...
Disrupted sleep is common with chronic illness, especially with pemphigus and pemphigoid. Between discomfort, itching, or medication side effects, you might struggle to rest well. We’ve collected a few tips...
This spotlight was recently featured in the American South Asian Network (ASAN). When the IPPF named Ramesh Swamy its new Board President, the decision fused professional acumen with lived experience....
When pemphigus or pemphigoid affects your mouth or throat, something as simple as eating can become a painful and frustrating experience. Blisters and raw areas in the mouth, on the...
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