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Meet Ramesh Swamy, New IPPF Board Chair

This spotlight was recently featured in the American South Asian Network (ASAN). When the IPPF named Ramesh Swamy its new Board...

August 24, 2025Anna Lane

Dupixent Approved for Bullous Pemphigoid

A Message from our Executive Director Dear IPPF Community, Today, I’m incredibly grateful to share the exciting news that the U.S. FDA...

June 20, 2025Patrick Dunn

Dupixent Meets Endpoints in Phase 2/3 Bullous Pemphigoid Study

Dupixent is the first and only biologic to achieve significant improvements in disease remission and symptoms in bullous pemphigoid positive pivotal...

September 11, 2024Patrick Dunn

KSL Beutner Laboratories Launches First Blood Test for Chronic, Debilitating Autoimmune Disease

Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were published online...

July 28, 2022Anna Lane

The IPPF Joins Newly Launched Global Dermatology Coalition

The Global Dermatology Coalition, a patient-led, multi-stakeholder group of organizations, has launched during the 75th World Health Assembly in Geneva.

July 11, 2022Anna Lane

Role of the IPPF During the COVID-19 Pandemic

The following Letter to the Editor was published in the Journal of the European Academy of Dermatology and Venereology on April...

July 5, 2022Anna Lane

Akari Therapeutics Announces Publication of Phase II Data of Nomacopan for Bullous Pemphigoid Treatment

Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were published online...

June 6, 2022Anna Lane

COVID-19 Vaccine Acceptance and Hesitancy in Patients with Autoimmune Bullous Diseases

The following was published as a Letter to the Editor in the British Journal of Dermatology in November, 2021. The letter...

April 21, 2022Anna Lane

Hannah Yale wins 2021 RareVoice Award

The IPPF is thrilled to share that Hannah Yale won the 2021 RareVoice award for State Advocacy by a Teenager, which...

December 16, 2021Anna Lane

IPPF Awarded Operational Grant from the Chan Zuckerberg Initiative

The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative in support...

December 15, 2021Patrick Dunn
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IPPF’s Marc Yale Named President of GlobalSkin Board of Directors

We're excited to share that last month, the IPPF's Marc Yale was named as President of the Board of Directors of...

December 6, 2021Patrick Dunn
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2021 IPPF Scientific Symposium

The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held in cooperation...

December 3, 2021Kevin Mead
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Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and...

April 28, 2021Anna Lane
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COVID-19 Pandemic and Autoimmune Bullous Diseases

The results of our survey are published in ​​​the Journal of The European Academy of Dermatology and Venereology: COVID-19 Pandemic and...

April 5, 2021Anna Lane
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Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants

The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate in a...

January 12, 2021Anna Lane
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Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV

The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio's lead product candidate for treatment of mucosal pemphigus vulgaris,...

May 7, 2020Patrick Dunn
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Cabaletta Bio Announces FDA Orphan Drug Designation for DSG3- CAART for the Treatment of Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for patients with B...

February 17, 2020Patrick Dunn
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Positive Proof-of-Concept Data for Efgartigimod in Pemphigus Vulgaris

23 patients were evaluated for efficacy in an adaptive Phase 2 trial aiming to establish optimal treatment regimen argenx, a clinical-stage...

January 5, 2020Patrick Dunn
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Phase III PEMPHIX Study Shows Genentech’s Rituxan (Rituximab) Superior to Mycophenolate Mofetil in Patients With Pemphigus Vulgaris

Genentech, a member of the Roche Group, announced data this week from the Phase III PEMPHIX study evaluating the efficacy and...

October 15, 2019Patrick Dunn
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Cabaletta Bio Receives IND Clearance from FDA to Initiate First Clinical Trial of DSG3-CAART in Patients with Mucosal Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for the treatment of...

October 4, 2019Patrick Dunn
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