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2019 IPPF Patient
Education Conference

Philadelphia, PA // October 11-13, 2018

Hosts: Aimee Payne, MD, PhD & Victoria Werth, MD
Early registration until 8/30

IPPF Natural History Study

Sponsored by NORD and the FDA, this new study will advance P/P research with help from YOU, the patient.

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Become a Healing Hero

Whether they be patients, family, friends, caretakers, medical professionals, or rare disease advocates, our Healing Heroes share the same vision:

No disease is too rare for a cure.

Healing Heroes go above and beyond to support the IPPF community by making sustaining, monthly gifts to support our mission of improving the quality of life for all those affected by pemphigus and pemphigoid.

Become a Healing Hero Today!

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Staff

Our Peer Health Coaches are more than a source of information, they are patients like you.

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Patients & Caregivers

Receive customized support as a patient, caregiver, family member, or friend.

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For Medical Professionals

Find expert-recommended article lists, disease and treatment information, and more.

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P/P Awareness Program

Increasing P/P awareness is essential to reducing diagnosis times and treatment delays.

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Disease Registry

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Clinical Trials

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Treatments

"The IPPF always seems to help me get back on track" - Patricia, CA
2015-10-09T09:25:31-07:00
"The IPPF always seems to help me get back on track" - Patricia, CA
"Mei Ling, Thank you so much for your concern, and encouragement. Last year when we first spoke, I was in a pretty low place. Due to your council, and kind words.I have continued to fight this, and could not have done it without your help." - Ryan, CA
2015-09-16T08:48:34-07:00
"Mei Ling, Thank you so much for your concern, and encouragement. Last year when we first spoke, I was in a pretty low place. Due to your council, and kind words.I have continued to fight this, and could not have done it without your help." - Ryan, CA
"As someone newly (and finally!) diagnosed with MMP, I can't say enough about Mei Ling Moore, a peer coach who listens and informs and cares so deeply. This organization has been a godsend!"

-Judi

2014-09-30T15:44:48-07:00

-Judi

"As someone newly (and finally!) diagnosed with MMP, I can't say enough about Mei Ling Moore, a peer coach who listens and informs and cares so deeply. This organization has been a godsend!"
"It's been helpful to know I can get the support of the IPPF and others with similar conditions!  Someday I hope to attend the annual conference!"
— Bonnie
2014-09-02T19:47:45-07:00
"It's been helpful to know I can get the support of the IPPF and others with similar conditions!  Someday I hope to attend the annual conference!" — Bonnie
"When first diagnosed I left the hospital after a month, lost and despondent. You helped ground me during the worst time of my life. I've not said it before publicly. THANK YOU for your advocacy and ALL you do on our behalf!"
— Randi, FL
2014-08-28T08:36:16-07:00
"When first diagnosed I left the hospital after a month, lost and despondent. You helped ground me during the worst time of my life. I've not said it before publicly. THANK YOU for your advocacy and ALL you do on our behalf!" — Randi, FL
"When I was first diagnosed the site and leaders answered my questions and concerns. I appreciate all the information you give us. Makes you feel not so alone."
— Peggy, OH
2014-08-28T08:35:05-07:00
"When I was first diagnosed the site and leaders answered my questions and concerns. I appreciate all the information you give us. Makes you feel not so alone." — Peggy, OH
"I really can't find the words to once again, thank you, for your good work!"
2014-07-17T22:12:47-07:00
"I really can't find the words to once again, thank you, for your good work!"
"Appreciate all your hard work in educating those of us out here dealing with this bizarre disease!"
— Gary
2014-07-17T22:12:14-07:00
"Appreciate all your hard work in educating those of us out here dealing with this bizarre disease!" — Gary
"Great source of info, for newly diagnosed and revisiting people with Pemphigus & Pemphigoid. Please keep up the good work guys!"
— Toni, UK
2014-07-17T22:11:49-07:00
"Great source of info, for newly diagnosed and revisiting people with Pemphigus & Pemphigoid. Please keep up the good work guys!" — Toni, UK
"I think it is a life saver to us. It is wonderful to have someone to talk with who has this problem also. Support is the only answer to help us mentally and emotionally through this horrible disease."
— Pat, IA
2014-07-17T22:11:23-07:00
"I think it is a life saver to us. It is wonderful to have someone to talk with who has this problem also. Support is the only answer to help us mentally and emotionally through this horrible disease." — Pat, IA
"I don't know what I would have done with out this website. They helped me locate a doctor in my area. The peer coaches are awesome! They are all people that have been through same as us. Its refreshing to talk to someone that is familiar with my disease."
— Mia
2014-07-17T22:10:54-07:00
"I don't know what I would have done with out this website. They helped me locate a doctor in my area. The peer coaches are awesome! They are all people that have been through same as us. Its refreshing to talk to someone that is familiar with my disease." — Mia
"The IPPF website has extremely useful information for anybody dealing with this disease. I've learned as much from that site as I did from my doctors. The staff is wonderfully helpful and they put on a great conferences well."
— Scott, IL
2014-07-17T22:09:48-07:00
"The IPPF website has extremely useful information for anybody dealing with this disease. I've learned as much from that site as I did from my doctors. The staff is wonderfully helpful and they put on a great conferences well." — Scott, IL
"This organization is a most wonderful resource and support, I would highly recommend it. It sure helped me!!!!"
— Vicki, NC
2014-05-06T23:45:08-07:00
"This organization is a most wonderful resource and support, I would highly recommend it. It sure helped me!!!!" — Vicki, NC
"I am doing so much better thanks to the IPPF. I have been on treatment for a week and feel 100% better! I want to thank the IPPF, because if I hadn't received the doctor referral list I would not have found a doctor that could properly treat me."
— Keturah, NY
2014-05-06T23:25:08-07:00
"I am doing so much better thanks to the IPPF. I have been on treatment for a week and feel 100% better! I want to thank the IPPF, because if I hadn't received the doctor referral list I would not have found a doctor that could properly treat me." — Keturah, NY
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