Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

Mid-Atlantic Virtual Support Group Image
Saturday, February 6, 2021 4:00pm (PST)
Mid-Atlantic Virtual Support Group
Topic: Peer Support

This is a virtual meeting and the Google Meet information will be sent upon registration.

Chicago Virtual Support Group Meeting Image
Thursday, February 11, 2021 6:00pm (PST)
Chicago Virtual Support Group Meeting
Topic: February Meeting

This is a virtual meeting and Google Meet information will be sent upon registration.

2021 International Scientific Symposium Image
Sunday, September 19, 2021 12:00am (PDT)
2021 International Scientific Symposium
Topic: Pemphigus and Pemphigoid Lost in Translation: From Mechanisms to Therapy

IPPF Scientific Meeting and Satellite Symposium to the 50th Annual Meeting of the European Society for Dermatological Research (ESDR)…

PemPress

Tuesday, January 12, 2021

Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants
Posted by Anna Lane

The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate…

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Tuesday, November 24, 2020

Janet Segall: Foundation of Hope
Posted by Anna Lane

I’m in awe of the wonderful people who have worked so hard to make this organization into what I…

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Friday, November 6, 2020

David Baron: Diagnosis and Hope
Posted by Anna Lane

Any time I’ve needed help, the IPPF has been there for me.

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Friday, October 30, 2020

Hannah Yale: Empowerment through Community
Posted by admippf

Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I…

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Wednesday, October 21, 2020

Inspiring Hope: Ellen’s Story
Posted by Anna Lane

Thanks to modern medicine, great physicians, and the IPPF, I’ve learned to live confidently and successfully with a rare…

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Friday, October 16, 2020

Inspiring Hope: Noel’s Story
Posted by Anna Lane

The articles on the IPPF website became my daily religion. I started reading them routinely and sharing them with…

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Tuesday, September 22, 2020

The IPPF Welcomes a New Executive Director
Posted by Marc Yale

“I am delighted to join the Foundation. It is clear that the team of staff, Board of Directors, and…

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Wednesday, September 9, 2020

Rituximab to be Included in Taiwan’s National Health Insurance (NHI) Program to Treat Pemphigus Vulgaris
Posted by admippf

Several new drugs used to treat different types of cancer are to be included in the national health insurance…

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Friday, June 26, 2020

Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Posted by admippf

Vaccination Information Related to Autoimmune Bullous Diseases The following information originated from recommendations made by the European Reference Networks…

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Thursday, May 7, 2020

Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV
Posted by admippf

The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio’s lead product candidate for treatment of mucosal…

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