Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

Peer Coaches offer the opportunity to communicate with specific members of the IPPF community who have pemphigus and pemphigoid. Peer Coaches are volunteers who have learned how to manage their diseases. They are willing to share their personal tips and tricks, as well as IPPF resources and educational materials that help people affected by pemphigus and pemphigoid to have meaningful discussions with their healthcare teams.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

Tri-State NY Virtual Support Group Meeting Image
Monday, July 11, 2022 6:30pm (PDT)
Tri-State NY Virtual Support Group Meeting
Topic: Peer Support

This is a virtual meeting and the Zoom and phone call information will be sent upon registration.

Rocky Mountain CO Virtual Support Group Image
Sunday, July 17, 2022 12:00pm (PDT)
Rocky Mountain CO Virtual Support Group
Topic: July Meeting

This is a virtual meeting and the Zoom and phone call information will be sent upon registration.

Patient Education Webinar Image
Wednesday, July 20, 2022 12:30pm (PDT)
Patient Education Webinar
Topic: The Eyes Have it: Eye Care and Pemphigus/Pemphigoid

PemPress

Monday, June 6, 2022

Akari Therapeutics Announces Publication of Phase II Data of Nomacopan for Bullous Pemphigoid Treatment
Posted by Anna Lane

Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were…

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Thursday, April 21, 2022

COVID-19 Vaccine Acceptance and Hesitancy in Patients with Autoimmune Bullous Diseases
Posted by Anna Lane

The following was published as a Letter to the Editor in the British Journal of Dermatology in November, 2021….

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Friday, February 25, 2022

Rare Disease Day and Rare Disease Week: 2022
Posted by Anna Lane

We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is…

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Friday, February 18, 2022

The IPPF Announces a New Executive Director
Posted by Anna Lane

I am pleased to announce Patrick Dunn as our newest Executive Director.

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Wednesday, January 19, 2022

IPPF 2021 Year in Review
Posted by Anna Lane

We are happy to report that the IPPF had another great year in 2021. The infographic below highlights key…

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Thursday, December 16, 2021

Hannah Yale wins 2021 RareVoice Award
Posted by Anna Lane

The IPPF is thrilled to share that Hannah Yale won the 2021 RareVoice award for State Advocacy by a…

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Wednesday, December 15, 2021

IPPF Awarded Operational Grant from the Chan Zuckerberg Initiative
Posted by Patrick Dunn

The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative…

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Thursday, December 9, 2021

Connecting at the 2021 IPPF Virtual Patient Education Conference
Posted by Anna Lane

The willingness to help one another, even through a computer screen, will always be a silver lining I will…

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Monday, December 6, 2021

IPPF’s Marc Yale Named President of GlobalSkin Board of Directors
Posted by Patrick Dunn

We’re excited to share that last month, the IPPF’s Marc Yale was named as President of the Board of…

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Friday, December 3, 2021

2021 IPPF Scientific Symposium
Posted by Kevin Mead

The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held…

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