Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

Patient Education Webinar Image
Monday, May 10, 2021 2:30pm (PDT)
Patient Education Webinar
Topic: Back to Basics: All About Pemphigoid

South Florida Virtual Support Group Image
Sunday, May 16, 2021 2:00pm (PDT)
South Florida Virtual Support Group
Topic: May Meeting

This is a virtual meeting and Zoom information will be sent upon registration.

Patient Education Webinar Image
Tuesday, May 18, 2021 3:00pm (PDT)
Patient Education Webinar
Topic: Pemphigus Phase 3 Trial, ADDRESS with argenx

PemPress

Wednesday, April 28, 2021

Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid
Posted by Anna Lane

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan…

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Tuesday, April 20, 2021

Public Statement: Medicaid and CHIP Payment and Access Commission (MACPAC)
Posted by Marc Yale

On April 8, 2021, IPPF Advocacy & Research Coordinator, Marc Yale, issued a statement during the Medicaid and CHIP…

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Tuesday, April 13, 2021

FDA Listening Session on Pemphigus and Pemphigoid
Posted by Patrick Dunn

On February 8, 2021, the US Food and Drug Administration (FDA) held a Listening Session with patients representing the…

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Monday, April 5, 2021

COVID-19 Pandemic and Autoimmune Bullous Diseases
Posted by Anna Lane

The results of our survey are published in ​​​the Journal of The European Academy of Dermatology and Venereology: COVID-19…

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Thursday, March 25, 2021

Statement Regarding Anti-Asian Racism and Healthcare Inequities
Posted by Patrick Dunn

March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare…

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Friday, March 19, 2021

NORD Statement about the American Rescue Plan
Posted by Anna Lane

The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan…

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Tuesday, March 16, 2021

The Urgent Needs of Pemphigus Patients: Elevating Awareness
Posted by Anna Lane

The IPPF has published a white paper focusing on the urgent needs of pemphigus patients.

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Wednesday, March 10, 2021

Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Posted by Patrick Dunn

Vaccination Information Related to Autoimmune Bullous Diseases The information in this vaccination section originated from recommendations made by the…

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Friday, February 19, 2021

Rare Disease Day and Rare Across America: 2021
Posted by Anna Lane

We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is…

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Tuesday, January 12, 2021

Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants
Posted by Anna Lane

The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate…

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Support our critical patient services, research, advocacy, and awareness efforts today

Ways to Give