Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

UNC Autoimmune Clinics Virtual Peer Support Session Image
Tuesday, January 25, 2022 7:00pm (PST)
UNC Autoimmune Clinics Virtual Peer Support Session
Topic: January Meeting

This is a virtual meeting for North Carolina residents.

Patient Education Webinar Image
Monday, January 31, 2022 2:00pm (PST)
Patient Education Webinar
Topic: Ask The Experts- Dermatology and Dentistry Q&A

Scientific Seminar Webinar Series Image
Monday, February 7, 2022 8:00am (PST)
Scientific Seminar Webinar Series
Topic: Scientific Seminar Series: February 7, 2022

PemPress

Wednesday, January 19, 2022

IPPF 2021 Year in Review
Posted by Anna Lane

We are happy to report that the IPPF had another great year in 2021. The infographic below highlights key…

Read more

Thursday, December 16, 2021

Hannah Yale wins 2021 RareVoice Award
Posted by Anna Lane

The IPPF is thrilled to share that Hannah Yale won the 2021 RareVoice award for State Advocacy by a…

Read more

Wednesday, December 15, 2021

IPPF Awarded Operational Grant from the Chan Zuckerberg Initiative
Posted by Patrick Dunn

The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative…

Read more

Thursday, December 9, 2021

Connecting at the 2021 IPPF Virtual Patient Education Conference
Posted by Anna Lane

The willingness to help one another, even through a computer screen, will always be a silver lining I will…

Read more

Monday, December 6, 2021

IPPF’s Marc Yale Named President of GlobalSkin Board of Directors
Posted by Patrick Dunn

We’re excited to share that last month, the IPPF’s Marc Yale was named as President of the Board of…

Read more

Friday, December 3, 2021

2021 IPPF Scientific Symposium
Posted by Kevin Mead

The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held…

Read more

Wednesday, December 1, 2021

Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Posted by Patrick Dunn

IPPF Medical Advisory Council Statement: COVID-19 Update (Updated November 16, 2021) Pemphigus and pemphigoid patients are recommended to receive…

Read more

Friday, June 18, 2021

Oral Health and Rare Disorders: NORD Webinar Recording
Posted by Anna Lane

Last month, the National Organization for Rare Disorders (NORD) hosted a webinar featuring IPPF Medical Advisory Council Member, Dr….

Read more

Friday, June 11, 2021

The IPPF Welcomes New Members to its Board of Directors
Posted by Anna Lane

The IPPF Board of Directors and staff members are excited to welcome three new board members, Carolyn Fota, Laurence…

Read more

Wednesday, April 28, 2021

Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid
Posted by Anna Lane

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan…

Read more

Support our critical patient services, research, advocacy, and awareness efforts today

Ways to Give