Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

South Florida Virtual Support Group Image
Sunday, September 13, 2020 2:00pm (PDT)
South Florida Virtual Support Group
Topic: September

This is a virtual meeting and Zoom information will be sent upon registration.

2021 International Scientific Symposium Image
Sunday, September 19, 2021 12:00am (PDT)
2021 International Scientific Symposium
Topic: Pemphigus and Pemphigoid Lost in Translation: From Mechanisms to Therapy

IPPF Scientific Meeting and Satellite Symposium to the 50th Annual Meeting of the European Society for Dermatological Research (ESDR)…

PemPress

Friday, June 26, 2020

Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Posted by admippf

This page was last updated on June 23, 2020. As news of coronavirus disease (COVID-19) changes hour by hour,…

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Thursday, May 7, 2020

Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV
Posted by admippf

The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio’s lead product candidate for treatment of mucosal…

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Tuesday, February 25, 2020

Advocacy in Action
Posted by Rebecca Strong

You may be aware of the IPPF’s advocacy efforts. Now, we need you to advocate, too. Your story is…

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Monday, February 17, 2020

Cabaletta Bio Announces FDA Orphan Drug Designation for DSG3- CAART for the Treatment of Pemphigus Vulgaris
Posted by admippf

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for patients…

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Sunday, January 5, 2020

Positive Proof-of-Concept Data for Efgartigimod in Pemphigus Vulgaris
Posted by admippf

23 patients were evaluated for efficacy in an adaptive Phase 2 trial aiming to establish optimal treatment regimen argenx,…

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Tuesday, October 15, 2019

Phase III PEMPHIX Study Shows Genentech’s Rituxan (Rituximab) Superior to Mycophenolate Mofetil in Patients With Pemphigus Vulgaris
Posted by admippf

Genentech, a member of the Roche Group, announced data this week from the Phase III PEMPHIX study evaluating the…

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Friday, October 4, 2019

Cabaletta Bio Receives IND Clearance from FDA to Initiate First Clinical Trial of DSG3-CAART in Patients with Mucosal Pemphigus Vulgaris
Posted by admippf

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for the…

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Friday, September 27, 2019

Linda’s Still Standing (Patient Journey Series #8)
Posted by admippf

The IPPF conference was the light and guide that walked us through a very dark tunnel. A tunnel we…

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Thursday, September 19, 2019

Minatallah Finds Her Role as a Dental Student (Patient Journey Series #7)
Posted by admippf

We were under the impression that dentists don’t actually play a role in these stories, we just refer them…

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Thursday, September 12, 2019

Toby’s Luck (Patient Journey Series #6)
Posted by admippf

Having excellent care and support (and even an infusion center) right here in my neighborhood gives me a sense…

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