Our vision

To find a cure for pemphigus and pemphigoid.

Find a doctor

Looking for a doctor who knows how to treat pemphigus or pemphigoid? Find qualified medical and dental professionals in your area. Search our map and filter by specialty.

Find a doctor

Ask a coach

The IPPF’s Peer Health Coaches (PHC) are pemphigus and pemphigoid patients who help more than 1,200 patients and caregivers each year. These specially trained PHCs reduce patient anxiety and uncertainty while providing unbiased disease and treatment knowledge. You can find our PHCs engaging the community through social media, emails, phone calls, and in-person support. The goal of our PHC program is to ensure we help every person who needs assistance in the shortest amount of time possible.

Ask a coach

Clinical Trials and Research

Advocacy and Awareness

12,474
dental professionals reached through exhibits
8,727
students and faculty reached through patient educator program
50
congressional offices visited so far in 2020, advocating on patients’ behalf
8
advocacy support letter sign-ons that will help provide better access to healthcare for our community

Advocacy

The IPPF develops relationships with congressional representatives and other support organizations in order to advocate for favorable state and federal legislation, research funding, and policies or regulations that benefit our community at large.

Learn more about advocacy

Awareness

Our Awareness Program seeks to accelerate diagnosis times by conducting outreach to the dental and medical communities. We focus on the importance of obtaining a correct biopsy for undiagnosed patients, which is the first step toward improving patient quality of life.

Biopsies Save Lives

Tell us your story!

Upcoming Events

Patient Education Webinar Image
Friday, December 10, 2021 1:00pm (PST)
Patient Education Webinar
Topic: Oral Health and Care for Pemphigus and Pemphigoid

Southern California Virtual Support Group Meeting Image
Saturday, December 11, 2021 10:00am (PST)
Southern California Virtual Support Group Meeting
Topic: Stress and Autoimmunity: Minimizing Inflammation in the Age of Covid-19

This is a virtual meeting and the Zoom and phone call information will be sent upon registration.

UNC Autoimmune Clinics Virtual Peer Support Session Image
Tuesday, December 28, 2021 7:00pm (PST)
UNC Autoimmune Clinics Virtual Peer Support Session
Topic: December Meeting

This is a virtual meeting for North Carolina residents.

PemPress

Friday, December 3, 2021

2021 IPPF Scientific Symposium
Posted by Kevin Mead

The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held…

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Wednesday, December 1, 2021

Information for Pemphigus and Pemphigoid Patients Related to COVID-19
Posted by Patrick Dunn

IPPF Medical Advisory Council Statement: COVID-19 Update (Updated November 16, 2021) Pemphigus and pemphigoid patients are recommended to receive…

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Friday, June 18, 2021

Oral Health and Rare Disorders: NORD Webinar Recording
Posted by Anna Lane

Last month, the National Organization for Rare Disorders (NORD) hosted a webinar featuring IPPF Medical Advisory Council Member, Dr….

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Friday, June 11, 2021

The IPPF Welcomes New Members to its Board of Directors
Posted by Anna Lane

The IPPF Board of Directors and staff members are excited to welcome three new board members, Carolyn Fota, Laurence…

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Wednesday, April 28, 2021

Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid
Posted by Anna Lane

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan…

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Tuesday, April 20, 2021

Public Statement: Medicaid and CHIP Payment and Access Commission (MACPAC)
Posted by Marc Yale

On April 8, 2021, IPPF Advocacy & Research Coordinator, Marc Yale, issued a statement during the Medicaid and CHIP…

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Tuesday, April 13, 2021

FDA Listening Session on Pemphigus and Pemphigoid
Posted by Patrick Dunn

On February 8, 2021, the US Food and Drug Administration (FDA) held a Listening Session with patients representing the…

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Monday, April 5, 2021

COVID-19 Pandemic and Autoimmune Bullous Diseases
Posted by Anna Lane

The results of our survey are published in ​​​the Journal of The European Academy of Dermatology and Venereology: COVID-19…

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Thursday, March 25, 2021

Statement Regarding Anti-Asian Racism and Healthcare Inequities
Posted by Patrick Dunn

March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare…

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Friday, March 19, 2021

NORD Statement about the American Rescue Plan
Posted by Anna Lane

The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan…

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