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the IPPF news site

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March 10, 2026
Travel Tips for People with Pemphigus or Pemphigoid

Traveling with a rare disease isn’t always simple but it is possible. Whether you're heading out for a much-needed vacation, visiting loved ones, or attending a conference, the desire to...

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February 10, 2026
 Staying Connected, Even When It’s Hard

If you are in a crisis or need immediate support, please don’t wait.Call or text the 988 Suicide & Crisis Lifeline at 988—available 24/7, free and confidential. If you or...

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January 13, 2026
Mental Health with a Rare Disease

If you are in a crisis or need immediate support, please don’t wait.Call or text the 988 Suicide & Crisis Lifeline at 988—available 24/7, free and confidential. If you or...

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December 16, 2025
Your Relationships Matter: Let’s Talk About Intimacy

Living with pemphigus and pemphigoid comes with many challenges - some visible, and others deeply personal. One area that can be especially difficult to talk about is how our diseases...

When both caring for someone and being the person receiving care, effective communication and a clear understanding of roles and needs are crucial.
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November 18, 2025
When You’re the Caregiver and a Patient

Caring for others while managing a rare disease can feel overwhelming. You want to be there for your loved ones, but your energy is limited. When both caring for someone...

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October 14, 2025
Managing Work When You’re Managing a Disease

Having pemphigus or pemphigoid can be a full-time job. Whether you're working full-time, part-time, or from home, pemphigus or pemphigoid can make staying productive difficult. And doctor appointments, infusions and...

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What are Pemphigus and Pemphigoid
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The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid.

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