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“Coaches Corner” – In Case of Emergency

Even if you don’t have a medical condition, it’s always wise to have your medical information accessible ICE (In Case of...

March 23, 2018Mei Ling Moore
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“Coaches Corner” – Keeping All Your Doctors in the Loop

Now that you know what you have been diagnosed with, it is important that all of the doctors who treat you...

January 4, 2018Mei Ling Moore
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“Coaches Corner” – When Tapering From Prednisone

In the beginning of treating a bullous skin disease like pemphigus, prednisone is usually prescribed.  A high dosage over time, can be...

September 30, 2016Mei Ling Moore
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“Coaches Corner” – Hair Loss

Although the scalp can be frequently involved with pemphigus/pemphigoid, associated hair loss has only rarely been described. In one case, treatment...

June 15, 2016Mei Ling Moore
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“Coaches Corner” – Dealing With Insurance and Lab Work

Dealing with insurance is not fun, especially when you’re in pain, and don’t know what the future holds. My experience has...

November 24, 2015Patrick Dunn
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“Coaches Corner”- Keep All of Your Doctors in the Know

Most individuals have a primary care physician. Many have a dentist. Many women have an OB/GYN for women’s health.  There are...

November 24, 2015Mei Ling Moore
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“Coaches Corner” – Prednisone

In a previous Coaches Corner I have given prednisone tips. It is a good time now for an update as there...

November 2, 2015Mei Ling Moore
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“Coaches Corner” – It’s Worth the Appeal

After months of uncertainty waiting for a diagnosis and finally finding a physician who can treat your rare skin disease, you...

October 9, 2015Marc Yale
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“Coaches Corner” – A Measure of Improvement

Pemphigus and pemphigoid (P/P) can take a long time to improve or reach remission. The process can take months or even...

September 18, 2015Marc Yale
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“Coaches Corner” – Moving to a New State

This article is meant for those of you who have recently or about to move to a new area. After living...

August 31, 2015Patrick Dunn
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“Coaches Corner” – Become Empowered

Having a rare disease like pemphigus or pemphigoid can make you feel like you have lost control of your life. After...

August 20, 2015Marc Yale
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“Coaches Corner” – Sunscreen

Living with a bullous skin disease is a challenge in more ways than one.  In addition to taking medication we also...

August 10, 2015Mei Ling Moore
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“Coaches Corner” – How Meditation Can Reduce Disease Activity

Studies have shown that there is a mind-body connection.  It is known that stress can cause headaches, muscle aches, tummy aches,...

July 8, 2015Mei Ling Moore
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“Coaches Corner” – Disability

Deciding whether you should continue working or go on Social Security Disability is a tough decision. It can add to your...

July 1, 2015Marc Yale
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“Coaches Corner” – Preparing for your Doctor Visit

Preparing for your doctor’s appointment can help you get the most from your visit. Taking an active role in your care...

June 5, 2015Marc Yale
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“Coaches Corner” – Traveling from Home

When you decide to take a trip outside of the state where you live it is a wise idea to make sure...

May 28, 2015Mei Ling Moore
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“Coaches Corner” – Flare after Remission

Having a flare after being in remission can be a scary and frustrating experience. Thoughts run through your head about your...

May 14, 2015Marc Yale
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“Coaches Corner” – Caregiver Support

I recently spoke with a patient who stated that his marriage was under a great deal of strain – which is highly...

March 13, 2015Mei Ling Moore
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“Coaches Corner” – Oral Activity

When you experience disease activity in your mouth it can be quite uncomfortable.  Patients may experience blisters anywhere inside the oral...

November 24, 2014Mei Ling Moore
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“Coaches Corner” – Get a B-Cell Test

You just left your doctor’s office, and you’ve been told that they want to try Rituximab (Rituxan/Mabthera). Most likely, the doctor...

November 3, 2014Marc Yale

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