PemPress - All Posts Archives | IPPF

Oral Health and Rare Disorders: NORD Webinar Rcording

Last month, the National Organization for Rare Disorders (NORD)...

June 18, 2021Anna Lane

The IPPF Welcomes New Members to its Board of Directors

The IPPF Board of Directors and staff members are...

June 11, 2021Anna Lane

Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX),...

April 28, 2021Anna Lane

Public Statement: Medicaid and CHIP Payment and Access Commission (MACPAC)

On April 8, 2021, IPPF Advocacy & Research Coordinator,...

April 20, 2021Marc Yale

FDA Listening Session on Pemphigus and Pemphigoid

On February 8, 2021, the US Food and Drug...

April 13, 2021Patrick Dunn

COVID-19 Pandemic and Autoimmune Bullous Diseases

The results of our survey are published in the...

April 5, 2021Anna Lane

Statement Regarding Anti-Asian Racism and Healthcare Inequities

March 25, 2021One of the most important functions of...

March 25, 2021Patrick Dunn

NORD Statement about the American Rescue Plan

The National Organization for Rare Disorders (NORD) Rare Action...

March 19, 2021Anna Lane

The Urgent Needs of Pemphigus Patients: Elevating Awareness

The IPPF has published a white paper focusing on...

March 16, 2021Anna Lane

Information for Pemphigus and Pemphigoid Patients Related to COVID-19

IPPF Medical Advisory Council Statement: COVID-19 Vaccination Based on...

March 10, 2021Patrick Dunn

Rare Disease Day and Rare Across America: 2021

We are rare, we are many, we are strong,...

February 19, 2021Anna Lane

Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants

The International Alliance of Dermatology Patient Organizations (also known...

January 12, 2021Anna Lane

Janet Segall: Foundation of Hope

I'm in awe of the wonderful people who have...

November 24, 2020Anna Lane

David Baron: Diagnosis and Hope

Any time I’ve needed help, the IPPF has been...

November 6, 2020Anna Lane

Hannah Yale: Empowerment through Community

Empowerment through community: I have often felt powerless when...

October 30, 2020Patrick Dunn

Inspiring Hope: Ellen’s Story

Thanks to modern medicine, great physicians, and the IPPF,...

October 21, 2020Anna Lane

Inspiring Hope: Noel’s Story

The articles on the IPPF website became my daily...

October 16, 2020Anna Lane

The IPPF Welcomes a New Executive Director

“I am delighted to join the Foundation. It is...

September 22, 2020Marc Yale

Rituximab to be Included in Taiwan’s National Health Insurance (NHI) Program to Treat Pemphigus Vulgaris

Several new drugs used to treat different types of...

September 9, 2020Patrick Dunn

Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV

The U.S. FDA has granted Fast Track Designation for...

May 7, 2020Patrick Dunn

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