March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare diseases into...
The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan impacts the...
The IPPF has published a white paper focusing on the urgent needs of pemphigus patients.
We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is to harness...
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate in a...
I'm in awe of the wonderful people who have worked so hard to make this organization into what I dreamed about....
Any time I’ve needed help, the IPPF has been there for me.
Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I learned that...
Thanks to modern medicine, great physicians, and the IPPF, I’ve learned to live confidently and successfully with a rare and chronic...
The articles on the IPPF website became my daily religion. I started reading them routinely and sharing them with other PV...
“I am delighted to join the Foundation. It is clear that the team of staff, Board of Directors, and volunteers have...
Several new drugs used to treat different types of cancer are to be included in the national health insurance (NHI) program...
The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio's lead product candidate for treatment of mucosal pemphigus vulgaris,...
You may be aware of the IPPF’s advocacy efforts. Now, we need you to advocate, too. Your story is important and...
Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for patients with B...
23 patients were evaluated for efficacy in an adaptive Phase 2 trial aiming to establish optimal treatment regimen argenx, a clinical-stage...
Genentech, a member of the Roche Group, announced data this week from the Phase III PEMPHIX study evaluating the efficacy and...
Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for the treatment of...
The IPPF conference was the light and guide that walked us through a very dark tunnel. A tunnel we would’ve walked...
We were under the impression that dentists don’t actually play a role in these stories, we just refer them to a...