Akari Therapeutics recently announced positive results from the Phase II study of investigational nomacopan in bullous pemphigoid (BP) were published online...
The following was published as a Letter to the Editor in the British Journal of Dermatology in November, 2021. The letter...
We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is to harness...
I am pleased to announce Patrick Dunn as our newest Executive Director.
We are happy to report that the IPPF had another great year in 2021. The infographic below highlights key areas in...
The IPPF is thrilled to share that Hannah Yale won the 2021 RareVoice award for State Advocacy by a Teenager, which...
The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative in support...
The willingness to help one another, even through a computer screen, will always be a silver lining I will remember from...
We're excited to share that last month, the IPPF's Marc Yale was named as President of the Board of Directors of...
The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held in cooperation...
IPPF Medical Advisory Council Statement: COVID-19 Update (Updated November 16, 2021) Pemphigus and pemphigoid patients are recommended to receive an additional...
Last month, the National Organization for Rare Disorders (NORD) hosted a webinar featuring IPPF Medical Advisory Council Member, Dr. Yoshiyuki Mochida,...
The IPPF Board of Directors and staff members are excited to welcome three new board members, Carolyn Fota, Laurence Gallu, and...
On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and...
On April 8, 2021, IPPF Advocacy & Research Coordinator, Marc Yale, issued a statement during the Medicaid and CHIP Payment and...
On February 8, 2021, the US Food and Drug Administration (FDA) held a Listening Session with patients representing the International Pemphigus...
The results of our survey are published in the Journal of The European Academy of Dermatology and Venereology: COVID-19 Pandemic and...
March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare diseases into...
The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan impacts the...
The IPPF has published a white paper focusing on the urgent needs of pemphigus patients.