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Advocacy in Action

You may be aware of the IPPF’s advocacy efforts....

February 25, 2020Rebecca Strong

Cabaletta Bio Announces FDA Orphan Drug Designation for DSG3- CAART for the Treatment of Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the...

February 17, 2020Patrick Dunn

Positive Proof-of-Concept Data for Efgartigimod in Pemphigus Vulgaris

23 patients were evaluated for efficacy in an adaptive...

January 5, 2020Patrick Dunn

Phase III PEMPHIX Study Shows Genentech’s Rituxan (Rituximab) Superior to Mycophenolate Mofetil in Patients With Pemphigus Vulgaris

Genentech, a member of the Roche Group, announced data...

October 15, 2019Patrick Dunn

Cabaletta Bio Receives IND Clearance from FDA to Initiate First Clinical Trial of DSG3-CAART in Patients with Mucosal Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the...

October 4, 2019Patrick Dunn

Linda’s Still Standing (Patient Journey Series #8)

The IPPF conference was the light and guide that...

September 27, 2019Patrick Dunn

Minatallah Finds Her Role as a Dental Student (Patient Journey Series #7)

We were under the impression that dentists don’t actually...

September 19, 2019Patrick Dunn

Toby’s Luck (Patient Journey Series #6)

Having excellent care and support (and even an infusion...

September 12, 2019Patrick Dunn

Fred’s Perspective: Connecting with Other Patients (Patient Journey Series #5)

Just spending time with...

September 6, 2019Patrick Dunn

Kathleena Finds Strength as Both a Patient and a Doctor (Patient Journey Series #4)

I had never told anyone except my close family...

August 29, 2019Patrick Dunn

Mei Ling’s Story (Patient Journey Series #3)

I remember what it was like for me when...

August 22, 2019Patrick Dunn

Rudy Takes Control (Patient Journey Series #2)

Patient Journey Series, Story 2: Rudy Connects with the...

August 15, 2019Patrick Dunn

Halima’s Diagnosis (Patient Journey Series #1)

Welcome to the Patient Journey Series: Story 1, Halima's...

August 8, 2019Patrick Dunn

A Look Back at UNC Dental Day 2018

On October 12, 2018, I participated in the IPPF...

August 6, 2019Patrick Dunn

Ellen Levine Receives Harvard Medical School Dean’s Community Service Award

The IPPF is excited to announce that Ellen Levine,...

June 25, 2019Patrick Dunn

The IPPF Receives Grant from Sy Syms Foundation to Accelerate Diagnosis Times

The Sy Syms Foundation has awarded a $100,000 grant...

June 19, 2019Patrick Dunn

Rituxan Shown as Superior in Achieving Sustained PV Remission

Genentech announced this week that positive top line results...

June 13, 2019Patrick Dunn

NORD and Trio Health Publish New Book to Provide Critical Patient Insights Into the Burden of Living With and Treating Rare Diseases

As a NORD IAMRARE™ Registry Partner, the IPPF is...

June 3, 2019Patrick Dunn

Akari Therapeutics Announces Positive Initial Phase II Clinical Data in Orphan Skin Disease Bullous Pemphigoid

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX),...

May 23, 2019Patrick Dunn

European Commission Approves Roche’s MabThera (rituximab) for Pemphigus Vulgaris

On March 15, 2019, Roche announced that the European...

March 15, 2019Patrick Dunn

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