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IPPF Awarded Operational Grant from the Chan Zuckerberg Initiative

The IPPF is grateful to share that we have received a one-time, $50,000 grant from the Chan Zuckerberg Initiative in support...

December 15, 2021Patrick Dunn

Connecting at the 2021 IPPF Virtual Patient Education Conference

The willingness to help one another, even through a computer screen, will always be a silver lining I will remember from...

December 9, 2021Anna Lane
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IPPF’s Marc Yale Named President of GlobalSkin Board of Directors

We're excited to share that last month, the IPPF's Marc Yale was named as President of the Board of Directors of...

December 6, 2021Patrick Dunn
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2021 IPPF Scientific Symposium

The 2021 IPPF Scientific Symposium (September 19-21) featured three days of live sessions and abstract discussions. The event, held in cooperation...

December 3, 2021Kevin Mead
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Information for Pemphigus and Pemphigoid Patients Related to COVID-19

IPPF Medical Advisory Council Statement: COVID-19 Update (Updated November 16, 2021) Pemphigus and pemphigoid patients are recommended to receive an additional...

December 1, 2021Patrick Dunn
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Oral Health and Rare Disorders: NORD Webinar Recording

Last month, the National Organization for Rare Disorders (NORD) hosted a webinar featuring IPPF Medical Advisory Council Member, Dr. Yoshiyuki Mochida,...

June 18, 2021Anna Lane
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The IPPF Welcomes New Members to its Board of Directors

The IPPF Board of Directors and staff members are excited to welcome three new board members, Carolyn Fota, Laurence Gallu, and...

June 11, 2021Anna Lane
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Nomacopan Receives FDA Fast Track Designation for Bullous Pemphigoid

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and...

April 28, 2021Anna Lane
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Public Statement: Medicaid and CHIP Payment and Access Commission (MACPAC)

On April 8, 2021, IPPF Advocacy & Research Coordinator, Marc Yale, issued a statement during the Medicaid and CHIP Payment and...

April 20, 2021Marc Yale
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FDA Listening Session on Pemphigus and Pemphigoid

On February 8, 2021, the US Food and Drug Administration (FDA) held a Listening Session with patients representing the International Pemphigus...

April 13, 2021Patrick Dunn
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COVID-19 Pandemic and Autoimmune Bullous Diseases

The results of our survey are published in ​​​the Journal of The European Academy of Dermatology and Venereology: COVID-19 Pandemic and...

April 5, 2021Anna Lane
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Statement Regarding Anti-Asian Racism and Healthcare Inequities

March 25, 2021One of the most important functions of the IPPF is to distill scientific language related to rare diseases into...

March 25, 2021Patrick Dunn
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NORD Statement about the American Rescue Plan

The National Organization for Rare Disorders (NORD) Rare Action Network released a statement about how the American Rescue Plan impacts the...

March 19, 2021Anna Lane
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The Urgent Needs of Pemphigus Patients: Elevating Awareness

The IPPF has published a white paper focusing on the urgent needs of pemphigus patients.

March 16, 2021Anna Lane
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Rare Disease Day and Rare Across America: 2021

We are rare, we are many, we are strong, we are proud! The purpose of Rare Disease Day® is to harness...

February 19, 2021Anna Lane
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Patient-initiated Dermatology Research Needs Pemphigus and Pemphigoid Participants

The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting pemphigus and pemphigoid patients to participate in a...

January 12, 2021Anna Lane
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Janet Segall: Foundation of Hope

I'm in awe of the wonderful people who have worked so hard to make this organization into what I dreamed about....

November 24, 2020Anna Lane
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David Baron: Diagnosis and Hope

Any time I’ve needed help, the IPPF has been there for me.

November 6, 2020Anna Lane
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Hannah Yale: Empowerment through Community

Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I learned that...

October 30, 2020Patrick Dunn
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Inspiring Hope: Ellen’s Story

Thanks to modern medicine, great physicians, and the IPPF, I’ve learned to live confidently and successfully with a rare and chronic...

October 21, 2020Anna Lane

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